Should your specialist suggest treatment with Xyrem, an application will need to be made to your local PCT to request funding. In the first instance it is important to let your clinician make an official approach to the PCT on your behalf. They will provide the PCT with the following information:
- An outline of your case highlighting how the condition effects your current day to day life and any previous treatments
- A clear statement of the treatment plan proposed
- Evidence that you are likely to gain significant benefit from the treatment
- Evidence of any exceptional circumstances
If this initial application is refused then you may wish to work with your specialist to appeal the decision.