Narcolepsy UK (Registered Charity No. 114434) is an association of people with narcolepsy, their relatives and others interested in improving their lot. Its registered objects are the benefit, relief and aid of persons suffering from narcolepsy.
Its aims are:
- To promote awareness of narcolepsy and provide authoritative information about it to narcoleptics, to the medical profession and to the public.
- To support the establishment of local self-help groups in which narcoleptics can exchange experience and provide mutual support.
- To press for the recognition of narcolepsy as a disability by the social services.
- To encourage research into the causes and treatment of narcolepsy.
- To co-operate with narcolepsy associations overseas to further these aims.
A newsletter (Catnap) is published up to 4 times a year reporting developments from home and abroad with articles and correspondence.
The organisation is managed by volunteers from among the members and has only one part-time paid member of staff. The Association receives no major funding from the health authorities and depends on donations from individuals.