Just a quick update. I took my private PSG and MSLT results to NHS Neurologist and he diagnosed me with stress. I nearly shoved my results where the sun dont shine, I can tell you. Totally displeased with this diagnosis, mainly because it is as if he totally ignored my results and had his mind made up before he saw me. I went back to the private clinic for a diagnosis on my results. Two doctors concluded that my diagnosis is Periodic Limb Movement Disorder and have contacted my GP by telephone and will follow it up with a letter. PLMD can be associated with Narcolepsy although I definitely do not have this. I would be interested to know if any of your forum members suffer from this.

I will be starting medication when the letter arrives at the GP and hope to be able to get a good nights sleep soon and wake up in the morning feeling like I have had a sleep.

Just want to say thanks for the support this forum has given me and I wish I could find something similar for PLMD.

Andrea x

Number of arousals associated with leg movements	: 39
Number of arousals NOT associated with leg movements	: 52

Total number of Leg movements	: 184
Leg Movement Index	: 25.8
Total number of Leg movements meeting PLM criteria	: 70
Index of Leg movements meeting PLM criteria [#/h]	: 9.8

Hi John...the above is taken from my overnight Polysomnogram. I was completely wired up and had sensors all over me including my legs. The MSLT was the day after the overnight testing. It was these PSG results that the neurologist completely ignored and stated that if I was having proper sleep then I would not notice these leg movements. Give me a brick wall and I will bang my head against it please. PLMD is a recognised sleep disorder and if the consultants on the NHS that are dealing with patients are not prepared to look at the full result picture then I think we are in deep sh*t, as many people will get prescribed antidepressants, anxiolitics, etc etc for something that is not the cause of the symptoms. If I wasn't the head strong person that I am, I would be back on anti depressants (which I had for years before) and the consultants are happily giving out diagnosis of stress etc as being the cause of sleep problems. Once I have started my medication, I will be writing to him and also to whoever else I can find, higher up the ladder than him, and telling them exactly what I think of him and his pathetic attempt at being a neurologist with a specialty in sleep disorders. How many people are there out there being completely misdiagnosed???

Hello Andrea and welcome to the I am sick of banging my head against a brick wall club! I often wonder what some people must have done in a previous life to get the treatment they do in this one.

OK - from this it is quite clear that you have quite a severe case of PLMD; as I said anything in the index over 5 would indicate that. 9.8 is very high and sort of takes it beyond question. However that is one diagnosis and if you are predispossed towards sleep dissorders then surely another one isn't out of the question? Keep at them to explain how PLMD can be responsible for all your symptoms. If you are satidfied fine - if you are not fight on.

John