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 01/02/2011 18:54
 
xyrem 

Hello I am about to start on xyrem in a couple of weeks. wondered if anyone who currently uses it has any advice on coming off antidepressants (chomipramine) first and any side effects of xyren experienced??

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 02/02/2011 16:03
 

Well the first thing to say is well done for getting xyrem - you are in a fairly exclusive club! I spoke to one of our medical advisors this afternoon and he suggests that you should talk to your consultant about this as soon as possible. This should have been discussed with you at the outset. It is important (he said) to talk it through with your consultant as every patient is different. Some need chomipramine with xyrem while other don't. It all depends on a number of factors. While other posters will be able to tell you what they did - they are not you. So talk to your Specialist.

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 02/02/2011 16:07
 

Yes, thankyou - it has taken a while, but the wait will have been worth it I'm sure! I have appointment with my consultant on friday, so will be sure to ask her everything then.

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 03/02/2011 20:31
 

Hi Rachel,

Congrats on getting Xyrem. As john says speak to your specialist to see how or if you should come off clomipramine - only he knows your case. One thing I'd say which is common sense I know, but always good advice - try and write what you want to ask the specialist before you go to the appointment.

Side-effects for Xyrem as with other drugs vary person to person, a large amount don't have any side-effects - so try not to worry too much yet. Obviously read the instructions for the drug that covers everything you'll need to know. You'll be on two low dosages to start with and how much you notice the impact will depend on how well you normally sleep at night.

The only things I will emphasize are make sure when you take the drug that you're in bed and ready to sleep. Food really is important, if you eat too close to taking the drug it will have a huge impact on the drugs efficacy. I do have some tips to get the best out of the drug but at this point they wouldn't be much use. Just remember, depending on your case, it is likely to take a little while before you get the most out of this drug, don't get me wrong I thought the drug was great very quickly but it took a while before I got 7hrs sleep out of it - which is what I get now.

Good luck with it, I hope it helps you as much as it has helped many others.

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 03/02/2011 21:08
 

Thanks for the advice Gav,

Yes I'll be sure to make a list! How long did it take before you really started noticing the effects? Although I've heard it does wonders for most symptoms, I am worried about the cataplexy. As I've been on chlomipramine for so long, I know I'll be collapsing all the time without it!

Can't wait to be sleeping for longer than an hour before waking up again though!

Thanks again,

Rachel

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