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ForumForumDiscussionsDiscussionsLiving with nar...Living with nar...narcolepsy and add/adhdnarcolepsy and add/adhd
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 17/05/2012 20:11
 

found the last post very funny, sleeping in the bath is a big problem for me! If I amexpected somewhere with friends I can be sure one will arrive as I go for my bath to make sure I dnt fall asleep and end up late! Latest I have been was 5hrs late for dinner arangements and night out, my nice friends were very considerate and waited on me arriving before gettin food by which pont food had stopped being served I also set alarms throughout the day incase of a sleep attack!

I found this very interesting about ur daughter as mu daugher is the same although does not have narcolepsy, it never occured to me this might be a mild case of it! Instead she is being assessed for dyspraxia instead which is quite distressing for her, if she thought she was jst the same as mum I'm sure she would be more content and happier

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 20/05/2012 14:12
 

Just chiming in on the bath sleeping :) Sometimes I hate that my new flat has such a small bath (I'm 6'2, so a 4' bath is definitely a pain), but in reality it's probably saved me by being unable to slide under the water! I will confess that some of the other posts here involve things I've never personally suffered from, but then I guess that could be my own perceptions of ADD/attention span.

I become completely focussed almost to the point of tunnel-vision on projects and my work, but daily minutae (such as the examples given of brushing teeth, hot water etc) are things I've never had a problem bouncing between. I find myself able to bounce between daily tasks quite easily and can focus on getting things done without being distracted. I guess if anything you could say I have "big picture ADD" if that makes sense. Something will come up in life that may present a new job opportunity and I'll throw everything into that, then another project will come up a month or two later and all of a sudden I'll throw everything into that instead. My friends were shocked when I was able to finish University, because until then I could never stay in education for more than one year (I didn't start Uni until 26).

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 21/05/2012 09:41
 

Mumof3

everyons seems to have answered the first part of your question but not the second. Well, I agree with everyone that this sounds like normal narcolepsy and nothing somethig else instead. However the question why, hasn't been answered and I wonder if I can help with that. First thing to say is that until the narcolepsy is controlled you do feel a bit like you are in a dream world. It is difficult to concentrate and simple tasks can take forever. This is probably due to two things; your sleep patterns are so out of kilter you are really, really tired and you know how people without narcolepsy can get crabby and find it difficult to hold attention when they are tired? Well times that by 10 or 100 and that is how people with narcolepsy can feel; sleep isn't refreshing, even the EDS sleep only makes you feel better for a short while. The more you concentrate the more tired you become and it all becomes a vicious circle. The second reason relates to the causes of narcolepsy - the lack of orexin. Researchers are finding that orexin controls much more than the sleep/wake cycle in people and it is quite possible that a reduction of orexin can cause a reduction in concentration; it certainly effects the way that people process information so that might be another reason. The good news is with help, good sleep hygiene and medication all these things can be worked on in the years ahead but it will involve lots of support from your school and doctors.

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