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ForumForumDiscussionsDiscussionsNarcolepsy and ...Narcolepsy and ...Driving while having investigationsDriving while having investigations
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 12/01/2012 15:01
 

Hi, I've never posted on this forum, in fact, I've only just registered today. I'm hoping that someone will be able to give me some valuable advice? I've been suffering with sleep paralysis for a few years - I did suffer with it when I was in my late teens/early twenties, but it disappeared only to rear it's ugly head a few years ago - but it came back ten times worse. I do have what I think are hallucinations from time to time, but not regularly. Since it came back, I've also been suffering with excessive tiredness. The SP got to a point where it was happening every night some weeks so I plucked up the courage and visited my GP. He was really good about it, said he'd do some research because it wasn't something he saw very often, and get back in touch. He did send me a leaflet with suggestions of things I could do, and he also asked me to change to decaff, as I drank a ton of coffee, which I also did. The SP has only occured three times in the last 6 weeks, however the tiredness is worse than ever. I get 7 hours sleep each night, I get up by 6.30am, and by 10am my eyes are really trying to close in work (I have a desk job). The harder I try to keep them open, I start to lose my focus and can become a bit lightheaded. This is on and off all day I even try pushing my eyebrows upwards in an effort to stop them closing. I work in an office with another 4 people and keep wondering if they've noticed. I've never actually fell asleep at my desk, but I do try damn hard to stay awake. This tiredness has also happened whilst driving, so I don't drive long journeys any more. This is a regular occurence most days at the moment, with some days being worse than others. Today, I phoned in sick, as Mon, Tue, Wed were particularly bad, and went back to my GP. Unfortunately it was a locum, so I had to start from scratch - he asked me what SP was. He also asked me if I was depressed, which I half expected (I'm not - it's just that this situation is getting me down now) and I have to have a series of blood tests. He has also referred me to a sleep clinic for further investigation because he thinks narcolepsy is a possibility? Does it sound like it? He has also told me to inform DVLA, but do I have to inform them before I know whether or not I've got it? I do only do short and local journeys in the car - to work and back - and it's only a ten minute run. I also have a back problem so I rely on my car to get about. Any advice is really appreciated. Thanks

New Post
 12/01/2012 17:32
 

Hi Mazzie

You had me at line three - this person I thought has narcolepsy. £5 bet on it - any takers?

re DVLA if the diagnosis is Narcolepsy you are obliged to inform them, hand back your license and not drive again until your Consultant has your narcolepsy under control. However this is after you have a diagnosis and as of yet, this is something that you lack. So, from a legal view point do you have to inform DVLA - don't think so. HOWEVER, that just relates to narcolepsy and if the doctor decides that your sleep paralysis causes you to be unfit to drive he is obliged to notify DVLA, so while the narcolepsy question is quite clear, what isn't is the other (or same if I am right) problem of SP.

Sorry it isn't as black and white as you wanted - welcome to the great world of narcolepsy where shades of grey rule!

John

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 13/01/2012 12:43
 

Hi John, thanks for taking the time to reply I feel relieved that's it's now being looked into properly. I've just filled in the questionnaire for the sleep centre referral as my doctor didn't realise I had to, so hopefully I won't wait too long for an appointment - they are emailing it today. I'm not quite sure whether I should make my manager aware in work that this is being investigated - is it in my interests to do this, or am I better waiting for now? Thanks.

New Post
 13/01/2012 14:44
 

Wait until you get a diagnosis! Narcolepsy is considered a disability under the 2010 Act so once you have been diagnosed you have the full support of the law. If you tell an employer before a diagnosis he/she can make your life difficult with no legal comeback.

John

New Post
 13/01/2012 16:25
 

Hi John, thanks for the advice.

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