“We won the appeal, am so relieved! Your support means so much, thank you”
Having narcolepsy can have a significant impact on your quality of life, and may affect your financial situation. Your ability to earn an income may go down because of the effects of your health problems, so it is important to find out if there are any benefits you can claim. Even if you are still working there may be other benefits you are entitled to.
IMPORTANT NOTE: If you would like our help in applying for benefits, please contact us before you apply if at all possible; it is very difficult for us to assist after an application has been refused and you reach the appeal stage.
Types of benefit
Benefits that people with narcolepsy living in the UK may be eligible for include the following:
Disability Living Allowance
This is still available for children under 16, but is being phased out for older people. Our brief guide to DLA can be found here.
Personal Independence Payments
A benefit which helps with some of the extra costs caused by ill-health or disability. You must be between 16 and 64 to claim PIP. You can receive it whether you are in work or not. The amount that is paid depends on how your condition affects your ability to complete certain tasks, not on a particular condition. You will need an assessment to work out the level of help you get, and your needs will be regularly reassessed to make sure you are getting the right support. Please take a look at our guide to PIP.
Employment and Support Allowance
A benefit that provides compensation where a person has a limited capability for work as a result of ill-health or disability. Qualification for this benefit is determined by means of an assessment based on a points system.
Other benefits that people with narcolepsy may be entitled to include free prescriptions, Disabled Person's Railcard, free bus travel, Attendance Allowance and contributions to the cost of travel to and from work under the Access to Work scheme.
If you are a student in full- or part-time education, you may qualify for Disabled Students' Allowances.
Entitlement to these different forms of benefit will depend on your personal circumstances, and may also be different in different parts of the UK (eg as between England, Scotland, Wales and Northern Ireland).
To find out more
More details of all these benefits can be found at www.gov.uk/browse/disabilities.
To discuss your personal circumstances and entitlement to benefits, please call our helpline.