Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Seeking medical help

Seeking medical help when you first develop symptoms of narcolepsy can be very daunting, but your first point of contact should be your regular GP.

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What causes narcolepsy?

Narcolepsy is an auto-immune disorder, commonly caused by an infection like a sore throat.  Recently swine flu vaccination caused an upsurge in cases.

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What is narcolepsy?

Learn what narcolepsy is, what causes it and the key symptoms

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Who does narcolepsy affect?

How common narcolepsy is, who it affects, and when it occurs

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Epworth Sleepiness Scale

Assess how likely you are to fall asleep in everyday situations - the first step to a diagnosis.

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UK Sleep Centres

Centres around the UK with specialist experience of sleep disorders, including narcolepsy.

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Accident prevention and safety

Having narcolepsy may expose you to hazards that do not apply to other people. With that in mind, protect yourself by taking simple precautions.

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Narcolepsy and holidays

If you suffer from narcolepsy, going on holiday may present difficulties that simply do not occur for other people.

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50 Ways to Raise £50

50 simple ways to raise money for Narcolepsy UK

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Research snapshot: What does the future hold for narcolepsy treatment?

Everyone with narcolepsy knows that, as things stand, there is no cure for the condition.  Instead, we rely on medication to control the symptoms, though for many people those drugs do not work well enough or have adverse side-effects.  So what does the future hold?  Will there be new and more effective treatments?  What are scientists around the world working on to help us?

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