Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

node teaser

Narcolepsy UK attend Narcolepsy Advisory Board in Zurich

18 May 2019

In Zurich this week, Matt O'Neill took part in a Narcolepsy Advisory Board to enhance understanding of narcolepsy from the patient perspective.

node teaser

Template GP letter added to Resources

17 May 2019

Sometimes you may need a doctor's letter as evidence of your diagnosis of narcolepsy, for instance to support an application for benefits.

node teaser

Speaking today at the Royal Society of Medicine

10 May 2019

Narcolepsy UK represented at the Royal Society of Medicine event "Narcolepsy & Other Central Hypersomnias - Current and Future Trends".

node teaser

Workplace accomodations - Nikki's story

9 May 2019

Nikki works for the National Trust, and shares her experience of having to accomodate her job with her condition of narcolepsy.

node teaser

Julie Flygare at the Narcolepsy UK conference

17 April 2019

We are excited to announce that Julie Flygare will be a featured speaker at our 2019 Narcolepsy UK annual conference.

node teaser

Provigil / Dexamfetamine shortage - Teva UK

1 April 2019

We (Narcolepsy UK) have vigorously & repeatedly stressed the importance of these medicines being available and despite direct approaches by Matt (chairperson of our trustees), we are still unable to make re-supply happen any sooner. Teva UK have offered their apologies and appreciate that this doesn’t help from a patient perspective. They have also assured us that they are doing everything they can to prioritise the release and shipment of stock and for the future, have put a flag on their system to ensure that Narcolepsy UK are informed of any supply challenges if they arise.

node teaser

Narcolepsy UK needs YOU - to help set up a local meeting

15 February 2019

We are looking for people to help run simple meet up events across the nation. Week commencing 11th March 2019.

node teaser

BBC radio Northampton interview

2 February 2019

Recently a person with narcolepsy, Heather Korbey, was interviewed on the BBC radio Northampton "Chaz Harrison" programme. We are grateful to Heather for taking the opportunity to help spread awareness of the condition and the reality of the way it affects her life.

The radio show is available to stream until 28th February 2019. Heather speaks about narcolepsy at around the 40 minute mark. It can be found by following this link: https://www.bbc.co.uk/sounds/play/p06wttll

Pages