Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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Forthcoming meet-ups

14 May 2022

If you have or haven’t met anyone with narcolepsy before, then this is a good starting point.

In the attached document, you will find a list of forthcoming events, all of which are ‘hosted’ by volunteers and are purely social groups getting together to chat and learn from one another.

We hope we might able to hold a Conference later this year if we are able to source adequate funding.

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London Meet Up in May

20 April 2022

London Coffee Meet Up at Hej Coffee (Bermondsey) for people with Narcolepsy and their carers/friends/family on Saturday 28th May - drop in any time between 10:30 - 2:30pm.

Host for the event and representing Narcolepsy UK is Antonia.

The venue may change depending on the number of guests - check event details on Facebook - https://fb.me/e/2xF4u8x5m

 

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Day 4 of Good News Week!

1 April 2022

Not an April Fool but Day 4 of Good News Week........ £63,726 awarded over 6 years for PIP.

Don't despair if NO is said first time round - our Benefits Advisor will support you in FIGHTING for your rights. We live and breathe Narcolepsy so Let Us Help You ..... and You.

We are here to help x 

info@narcolepsy.org.uk

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Day 3 of Good News Week!

31 March 2022

Today we share a PIP Award of £53252 over 7 years.

A chronic neurological condition with no cure - this creates a Disability and you are entitled to PIP. It is not always an easy road but WE will support you through the process.

Pop an email to info@narcolepsy.org.uk to start the process. We are here to help.

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It’s Good News Week, Take 2

30 March 2022

Today our Benefits Advisor has let us know of an award of PIP for 5 years in the sum of £31,005 (not quite James Bond!)

If you would like to apply for PIP but don’t know where to start drop an email to info@narcolepsy.org.uk and we will help you through the process

We don’t have a set script when talking to people, we all have a real life understanding of narcolepsy/cataplexy, our services are FREE and we are here to help.

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It's good news week !!!

29 March 2022

Narcolepsy UK provides FREE services and today I can tell you of an AWARD for DLA of 7 years @ £38,182.10. This will increase as new DLA rates are published annually.

If YOU would like support in obtaining DLA for your child with narcolepsy then do email info@narcolepsy.org.uk. Don't fret if your reply is not instant as we work in sequence and it can take a day or so to get back to you sometimes :)

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Mike’s smashing the London Marathon for Narcolepsy UK!

3 March 2022

We are excited to announce a runner in the 2022 London Marathon, running in aid of Narcolepsy UK. Please share this post amongst your social networks, and if possible we would be extremely grateful for any sponsorship you may be able to provide.

Mike's story:

I am absolutely delighted to be running the London Marathon on behalf of Narcolepsy UK.

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Pirates of Penzance evening a great success

9 February 2022

Last Saturday the "Pirates of Penzance" event was a huge success. The swashbuckling pirates encouraged generosity of the audience to raise the rafters, and contributed £500 to Narcolepsy UK to help continue our free services. Our grateful thanks to Imperial Productions for their support.

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Feb 5th - Musical Theatre event in London, supporting Narcolepsy UK

27 January 2022

Imperial Productions Presents: The Pirates of Penzance, in aid of Narcolepsy UK 

Saturday 5th February 2022, 7.30pm - 

St Andrews URC Finchley Road/ Frognal Lane NW3 2DY

Join us on Saturday 5th of February for a one night only revival of our winter show “The Pirates of Penzance”. Tickets are free, but there will be a collection in aid of Narcolepsy UK.

You can also donate to Narcolepsy UK directly by following this link

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