Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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South Coast Challenge for Narcolepsy UK

16 July 2021

In September, four friends - Jo Collins, Robin Collins, Jan Howard and Lee Fishwick - will be taking on the South Coast Challenge to raise awareness and funds for Narcolepsy UK. The “Fab Four” will walk from Eastborne to Arundel, a distance of around 100km (~63 miles) over the course of just two days.

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Walk A Mile In My Shoes challenge update!

5 July 2021

Narcolepsy UK would like to thank Katie, Mandy and Laura for taking part in our Walk a Mile in My Shoes fundraising campaign. They have been enjoying doing this so much that they have shared some photos of their walks.

Find out more about the campaign by following the link below:

https://donate.giveasyoulive.com/campaign/walk-a-mile-in-my-shoes

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Awareness video - Don't Make Me Laugh

19 June 2021

I’m back!

Last time I appeared it was in Aintree & across the wider Liverpool area but this time, I’m going UK-wide or maybe even global!

Please help me to raise awareness by sharing my films, giving me a like and sending me to people who you know would like to understand more about narcolepsy.

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Notice of Temporary Service Delays

15 June 2021

Please be aware that we will be updating some of our backroom systems this week, from 16th June 2021. There may be some temporary service outages and will likely be delays in receiving or responding to communications. We will endeavour to keep disruption to a minimum and hope to be back to full service before the end of the week.

We apologise for any inconvenience this may cause.

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Walk A Mile In My Shoes challenge update!

7 June 2021

We’ve had a great first week of our Walk A Mile In My Shoes challenge. Join us today!

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Interview with Sarah Franklin

13 January 2021

In Sarah Franklin’s latest novel – How to Belong – one of the main characters has narcolepsy and cataplexy. Narcolepsy UK asked Sarah about the book, her motivations for writing about narcolepsy and how she set about researching the condition.

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Position statement on vaccination against COVID-19

10 January 2021

Given the causal link between the deployment of the Pandemrix swine flu vaccination in 2009/10 and the sudden onset of narcolepsy in some individuals, Narcolepsy UK sets out its position with regard to the ongoing vaccination campaign against the SARS-CoV-2 virus.

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Christmas closure

19 December 2020

Narcolepsy UK will officially be closed from Tuesday 22nd December 2020 until Tuesday 5th January 2021.

Any messages received during this period will not be seen until we reopen. We are sorry for the inconcenience but as a small team this is unavoidable.

For emergency contact ONLY please call our Operations Manager - Nicola Rule @ 07920 650552

We would like to take this opportunity to wish you all a healthy and happy festive period and hope for good things in 2021.

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Important information about Modafinil and pregnancy

17 November 2020

The Medicines and Healthcare products Regulatory Agency have issued a drug safety update regarding the use of Modafinil during pregnancy:

"Modafinil potentially increases the risk of congenital malformations when used in pregnancy. Modafinil should not be used during pregnancy and women of childbearing potential must use effective contraception during treatment and for 2 months after stopping modafinil."

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