Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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A Message of Thanks

31 May 2020

1-7 June 2020 is officially Volunteers' Week. Matt O'Neill, Chair of the board of Narcolepsy UK, has a message of thanks to all the volunteers who help us in our mission to meet the needs of the Narcolepsy and Idiopathic Hypersomnia community. This is especially true in these challenging times of global pandemic.

 

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New online support meeting added - Sundays

27 May 2020

Regular Support Group chats upcoming:

(please note this list replaces any previously advertised meeting details)

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Regular online support group chats - updated

10 May 2020

Regular Support Group chats upcoming:

(please note this list replaces any previously advertised meeting details)

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Regular online support group chats

29 April 2020

Regular Support Group chats upcoming:

Adele Bishop   -   Thursdays @ 5pm via Messenger

Heather Korbey   -   Tuesdays @ 3pm via Messenger

-   Wednesdays @ 7.30am via Messenger

Helen Strongman   -   Wednesdays @ 7.30pm via Zoom

Kerly Joy Bowga   -   Wednesdays @ 1pm via Zoom

-   Fridays @ 6pm via Zoom

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Vaccine Injury Compensation

23 April 2020

Vaccine Injury Compensation for a child with narcolepsy caused by seasonal flu vaccine

We are pleased to be able to report the successful outcome of the first case of its kind, an English appeal tribunal has now found that a child’s narcolepsy was likely caused by the seasonal flu vaccine and consequently found that a vaccine injury compensation payment under the Vaccine Damage Payment Act 1979 is due to the child in question.

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Online Support Groups available

15 April 2020

Narcolepsy UK volunteers have helped over 25 people in just the last few weeks through our Online Support Group Meetings.

If you want to get involved contact liam.sloan@narcolepsy.org.uk

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Online support group chats - 7th-10th April 2020

7 April 2020

Narcolepsy UK are offering Online Support Group Chats for PWN.

This weeks Online Support Groups are at -

  • Tuesday 07/04/2020 @ 5:00 pm - Video Chat with Adele 
  • Wed 08/04/2020 @ 7:00 pm - Video Chat with Kerly 
  • Thursday 09/04/2020 @ 5:00 pm - Video Chat with Adele 
  • Friday 10/04/2020 @ 2:00 pm - Video Chat with Kerly

If you are interested in taking part please email liam.sloan@narcolepsy.org.uk

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Online support group chats - 3rd April 2020

3 April 2020

FEELING ISOLATED? LONELY? NEED TO TALK?

Narcolepsy UK are offering Online Support Group Chats today for PWN.

They will take place at the times below with our trusted volunteers-

  • 2:00 pm with Heather
  • 5:00 pm with Adele

If you would like to join in please email liam.sloan@narcolepsy.org.uk, including the time of the meeting you would like to join and we will add you to the group.

Limited spaces.

Chats will take place via Messenger or Zoom.

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Online Support Meetings

25 March 2020

Hello everyone, here at Narcolepsy UK we think it is important to support each other in these very difficult times, so we are doing Online Support Meetings to help people with narcolepsy and their families/carers. If you want to chat to other people with narcolepsy or maybe you are feeling lonely, get in touch with me - Liam Sloan, Volunteer Coordinator at Narcolepsy UK and we will schedule you into one of the group chats, 4 per group. Alternatively you can also have a one on one with one of our staff/volunteers if needed.

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Narcolepsy does NOT mean higher risk of coronavirus

19 March 2020

In the current climate, everyone is extremely concerned about the effects of Covid-19 on their own and their family’s health. A number of conditions are associated with elevated risk of significant complications of the infection, including individuals whose immune systems are suppressed through disease or medication. 

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