Blog

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Every penny counts ...

24 January 2016

Just collecting all that unwanted small change can make a difference to Narcolepsy UK

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YouTube channel launched

22 January 2016

Today we are pleased to announce the launch of the Narcolepsy UK YouTube channel.

Over time it will grow, but for now we have 3 videosĀ fromĀ our 2015 conference. If you were not able to make it there in person, or if you want a refresh on some of the presentations then check out our new YouTube page by clicking here.

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Availability of Sodium Oxybate - An Update January 2016

11 January 2016

A substantive hearing on an application for Judicial Review of a refusal by NHS England of funding of sodium oxybate for a child is expected to take place in February 2016.

NHS England still does not have a Clinical Commissioning Policy in place for either adults or children.