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European Narcolepsy Day (March 19, 2016) - END Inequality Now

12 February 2016

Saturday 19 March 2016 is European Narcolepsy Day. This year our awareness campaign is to END Inequality Now. This includes - access to medication; reasonable adjustments in education and the workplace; benefits to help not hinder and compensation when it is promised. We have artwork and awareness materials to follow.

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UK study links Pandemrix to narcolepsy in adults

11 February 2016

Risk of Narcolepsy after AS03 Adjuvanted Pandemic A/H1N1 2009 Influenza Vaccine in Adults: A Case-Coverage Study in England.

Please see the attached link to an advance epublication detailing the findings of the above investigation.

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Update on Bristol Pandemrix Compensation Appeal Hearing

1 February 2016

Our chair Matt O'Neill was a witness at a court hearing in Bristol on 26 January 2016 in support of an application to an appeal tribunal for payment under the Vaccine Damage Payment Act 1979. This was in support of a child that developed narcolepsy after receiving the Pandemrix Swine Flu Vaccine. It is important to us all as the main requirement is to define the level of disability associated with narcolepsy and although this case obviously relates to an individual, please share this update to show your support for the family concerned.