Blog

node teaser

NHS public consultation - Please respond before 20th April

25 March 2016

NHS England Specialised Services Clinical Commissioning Policy
Sodium oxybate for symptom control of narcolepsy with cataplexy (children)

node teaser

Success for Jacky!

23 March 2016

Working with Peter Todd & his team at HJA, we have been successful in obtaining a 3 month trial of Sodium Oxybate for Jacky Lloyd. This will be followed by a review of its clinical efficiency and a final decision made as to funding. So, today we celebrate with Jacky & her family!

Narcolepsy UK will continue to lobby for access to medicines for all PWN in the UK.

node teaser

New research into potential "orexin" medication

22 March 2016

Reset Therapeutics, Inc., announced a collaboration with an affiliate of Alkermes plc for the discovery, development and commercialization of novel orexin receptor modulators from Reset’s drug discovery platform. The orexin system is a key modulator of wakefulness, appetite and mood, and its dysregulation is associated with central nervous system (CNS) disorders such as narcolepsy and depression.

node teaser

Welcome to our new look website

17 March 2016

A few years ago we launched an expanded website with the ambition to bring together narcolepsy information to help all those affected. This was a big step forward, but was by no means perfect. We gathered feedback and thoughts, and for some time now we have been working hard to revamp the site to offer better access and information. What you are now seeing is the results of that work.