Blog

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Update on Modafinil (Provigil) produced by Teva UK Ltd

30 September 2016

Narcolepsy UK investigate the reported shortage in availability of Modafinil (Provigil®).

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Fantastic Conference Fundraising

19 September 2016

Great fundraising efforts at conference

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Message from Dorothy Hand

15 September 2016

Dorothy Hand, founder of UKAN (the original patient support group from which Narcolepsy UK grew), has told us that she is thrilled that the National Annual Conference is being held here in Manchester this weekend at the Renaissance Hotel.

She reminds us that it was in Manchester in 1981 that the very first meeting was held, so you could say that Narcolepsy UK has 'come home'.

The two days will see Narcolepsy sufferers and supporters gathering to share experiences and listen to knowledgeable experts talk about this often misunderstood and misdiagnosed neurological disorder.

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Pitolisant / Wakix® Update

9 September 2016

We have now received confirmation from the UK Supplier that the Department of Health have now priced Wakix® (Pitolisant) as follows: