Blog

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In case you missed it ...

26 June 2017

Here's a summary of recent additions to our website

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Is Wakix® the new Xyrem® ?

25 June 2017

Is Wakix® the new Xyrem® ?

I do not ask this because of any similarities between what these two medications can do for people with narcolepsy but for other, far more frustrating reasons. Like Xyrem®, Wakix® has orphan drug status, its effects are not well understood, it is perceived as expensive and NHS adoption is slow because it is relatively new, despite the relevant NICE guidelines.

On May 23rd, 2016, I wrote the following paragraph:

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Smart narcolepsy cushion earns Year-8 student a place at TeenTech finals

24 June 2017

Year-8 student Nicole Hirst has invented a travel support to be used by people with narcolepsy

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Juan reaches Land's End

6 June 2017

Juan makes it to Land's End

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London to Brighton - Another great effort!

5 June 2017

Our thanks to Louise, another one of our gallant band of fundraisers, who has walked from London to Brighton in support of Narcolepsy UK.

That's 21 hours of walking over 2 days! Louise tells us it was one of the hardest physical endurance events she has ever done, but worth every penny in view of the sponsorship of around £750 she has raised.

Well done, Louise, and thank you from all at Narcolepsy UK!

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Volunteers Week 2017

1 June 2017

1-7 June 2017 is National Volunteers Week. Narcolepsy UK would like thank all of our volunteers for contributing their free time to help support the charity. Our volunteer community continues to grow stronger each year.

Some of the things we have our volunteers to thank for are network meeting support groups, raising public awareness and fundraising for the charity.

THANK YOU FOR ALL YOUR HARD EFFORTS!

Liam Sloan, Volunteer Coordinator