Blog

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World Narcolepsy Day

26 August 2019
WND, World Narcolepsy Day, charter

Narcolepsy UK partners with organisations across six continents to create inaugural World Narcolepsy Day on September 22nd, 2019

Narcolepsy UK is excited to announce that it is coming together with 24 organisations around the world to establish World Narcolepsy Day. This ground-breaking day, which will take place on Sunday, Sept. 22, 2019, will be dedicated to raising critical awareness for narcolepsy on a global scale.

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Narcolepsy Charter launches

12 August 2019
charter, survey, rights

We believe that people with narcolepsy and their families and friends have the same rights to a full and rounded life as any other person without having to make this happen. The Charter is a written statement of these rights based on responses to an online survey of 302 people with narcolepsy and 149 supporters undertaken by Adelphi Research. The survey was made possible with support from Adelphi Research, Lincoln Medical Limited, The National Lottery Community Fund and UCB Pharma.

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Idiopathic Hypersomnia

12 August 2019
idiopathic, hypersomnia, IH

We are pleased to confirm that IH (Idiopathic Hypersomnia) patients are welcome to register with our charity and to use the services we offer in the hope this will make life easier for you. You will be treated equally with our current client base and are welcome to join us at Conference where Dr Biswajit Chakrabarti will take the podium to speak on this topic.