Blog

node teaser

Adapting to support during the pandemic

26 October 2020

Narcolepsy UK - Adapting network meetings during the coronavirus pandemic

Narcolepsy UK has been running volunteer coordinated network meetings all over the UK successfully for many years. Due to the government's current restrictions on group gatherings we have been unable to run our meetings as normal. We have had to adapt so that we can continue to provide support that network meetings provide.

node teaser

#NarcolepsyStories: Heather Murphy

9 October 2020

One day I was a child who could get up at 6am and stay awake until late in the evening. The next I just couldn’t stay awake. About a year on, I experienced cataplexy quite suddenly. It was not gradual like the tiredness. I would collapse whenever I laughed or even just with the joy of seeing friends.

If a child came to you with seizure-like symptoms wouldn’t you take them a little more seriously?

node teaser

#NarcolepsyStories: Lee Martin

6 October 2020

Sleep is as vital as drinking water and people who sleep well simply cannot grasp just how devastating a sleep disorder like narcolepsy can be.

I've had narcolepsy for as long as I can remember. But I went undiagnosed for almost two decades. Then, in my 20s, I had a cataplexy attack for the first time, my muscles suddenly giving way during sex. This was one of the most frightening experiences of my life because I remained conscious but had no idea what was going on and thought I must be dying.

node teaser

#NarcolepsyStories: Nikita Tyler

2 October 2020

I had turned 13 and over the summer holidays, I began sleeping in until the afternoon and taking naps for the rest of the day. I put it down to feeling a bit depressed because my best friend at the time had moved away. My mum put it down to me being a lazy teenager. By the time I went back to school in September, the urge to sleep was becoming more frequent and more intense. I remember my eyes starting to sting in a religious studies lesson and I just wanted to shut them. At home, after school, I’d sit down and be asleep at exactly the same moment.