Last year Narcolepsy UK Chair Matt O'Neill and Operations Manager Nicola Rule travelled to Abergavenny to hear Dr Jose Thomas' plans for the establishment of a specialist sleep unit for patients throughout Wales. Matt then wrote a letter of support of behalf of Narcolepsy UK and our clients in Wales. Subsequently, Matt met again with Dr Thomas and with Dr Jane Dacre, where they confirmed the lack of specialist services in Wales and endorsed Dr Thomas' plan.
We are now delighted to have received the following update from Dr Thomas:
I am writing to let you know the outcome of my business case for a Sleep Centre in Aneurin Bevan University Health Board. You would be pleased to know that the Executives of the Health Board approved the business case last month. Funding will soon follow.
We intend to appoint a psychologist, an additional consultant in Sleep Medicine and administrative staff. This will enable us to reduce access times to the service, as well as provide a comprehensive service.
I am grateful for your support and encouragement. Thanks again for coming down to meet Dr Jane Dacre, President of the Royal College of Physicians during her visit to our Sleep Centre last November.
As you know, we have provided a service for patients from other areas of Wales with suspected Narcolepsy and other non-respiratory Sleep Disorders since 2012. With improved staffing we hope to provide a more timely service in the future. Hopefully we can make the referral process simpler so that any patient from Wales will be able to access our services easily.
Needless to say, I am very pleased for the future of Sleep Medicine in this Health Board and in Wales. Once again, thank you both for your support.
DR J Thomas, MBBS, MD, FRCP, RST, RPSGT,ES-Expert in Sleep Medicine
Consultant In Sleep and Respiratory Medicine
Aneurin Bevan Sleep Centre
Nevill Hall Hospital
On behalf of all our clients in Wales, we are grateful to Dr Thomas for his efforts in establishing his specialist sleep centre, which will be of enormous benefit to narcolepsy patients in the region.