Blog: Charity updates

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Narcolepsy UK attend Narcolepsy Advisory Board in Zurich

18 May 2019

In Zurich this week, Matt O'Neill took part in a Narcolepsy Advisory Board to enhance understanding of narcolepsy from the patient perspective.

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Template GP letter added to Resources

17 May 2019

Sometimes you may need a doctor's letter as evidence of your diagnosis of narcolepsy, for instance to support an application for benefits.

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Speaking today at the Royal Society of Medicine

10 May 2019

Narcolepsy UK represented at the Royal Society of Medicine event "Narcolepsy & Other Central Hypersomnias - Current and Future Trends".

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Julie Flygare at the Narcolepsy UK conference

17 April 2019

We are excited to announce that Julie Flygare will be a featured speaker at our 2019 Narcolepsy UK annual conference.

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Provigil / Dexamfetamine shortage - Teva UK

1 April 2019

We (Narcolepsy UK) have vigorously & repeatedly stressed the importance of these medicines being available and despite direct approaches by Matt (chairperson of our trustees), we are still unable to make re-supply happen any sooner. Teva UK have offered their apologies and appreciate that this doesn’t help from a patient perspective. They have also assured us that they are doing everything they can to prioritise the release and shipment of stock and for the future, have put a flag on their system to ensure that Narcolepsy UK are informed of any supply challenges if they arise.

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Narcolepsy UK needs YOU - to help set up a local meeting

15 February 2019

We are looking for people to help run simple meet up events across the nation. Week commencing 11th March 2019.

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Narcolepsy medications: new website resources

24 January 2019

We are pleased to announce that we have added to the information available on our website regarding medications used in the treatment of narcolepsy.

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Italian Narcolepsy Association (AIN), annual multidisciplinary seminar

15 December 2018

Italian Narcolepsy Association (AIN)

A very important aspect of our work is collaboration & engagement with other patient associations across the world and this weekend our Chair & Operations Manager are with other members of the EU Narcolepsy Association in Bologna, Italy for one of their regular annual meetings.

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