Blog: Charity updates

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Narcolepsy UK needs YOU - to help set up a local meeting

15 February 2019

We are looking for people to help run simple meet up events across the nation. Week commencing 11th March 2019.

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Narcolepsy medications: new website resources

24 January 2019

We are pleased to announce that we have added to the information available on our website regarding medications used in the treatment of narcolepsy.

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Italian Narcolepsy Association (AIN), annual multidisciplinary seminar

15 December 2018

Italian Narcolepsy Association (AIN)

A very important aspect of our work is collaboration & engagement with other patient associations across the world and this weekend our Chair & Operations Manager are with other members of the EU Narcolepsy Association in Bologna, Italy for one of their regular annual meetings.

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New Helpline and Benefits Advisor

17 November 2018

We are pleased to introduce to you Linda Reynolds who has joined us as Helpline and Benefits Advisor.

Linda is married with one adult daughter and with a close relative who has narcolepsy and cataplexy. She has a rather eclectic work history ranging from lecturing to making designer wear, managing manufacturing departments and shops and ending as a civil servant working on Tax Credits and latterly Universal Credit.

We look forward to working with Linda to offer support and in particular help with benefits to the UK narcolepsy community.

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Narcolepsy UK Conference 2018 presentation films now online

21 September 2018

During the recent Narcolepsy UK 2018 Conference in Manchester, we were able to livestream some of the speakers on social media. This was great for keeping people not able to travel to be with us engaged with activities, but was not able to offer the full experience. In particular, slides were not visible and sound levels were very low due to the limitations of the equipment used.

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Narcolepsy UK Conference: just days to go!

3 September 2018

We are now into the final few days before our annual conference in Manchester and are making great progress in pulling together the key themes & focus areas from our recent survey. We hope you all booked your tickets to hear and see the results first-hand as we prepare to translate these into our Narcolepsy Charter.

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Charter Questionnaire is now closed

3 August 2018

All of us here at Narcolepsy UK would like to say thank you for the massive response you provided to our charter questionnaire. We are already busily reviewing the content to present to you at the annual conference in Manchester 8th-9th September. 

Looking forward to seeing as many of you there as possible.

Link to conference booking - https://www.narcolepsy.org.uk/civicrm/event/info?reset=1&id=89

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