Blog: In the media

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Awareness video - Don't Make Me Laugh

19 June 2021

I’m back!

Last time I appeared it was in Aintree & across the wider Liverpool area but this time, I’m going UK-wide or maybe even global!

Please help me to raise awareness by sharing my films, giving me a like and sending me to people who you know would like to understand more about narcolepsy.

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Position statement on vaccination against COVID-19

10 January 2021

Given the causal link between the deployment of the Pandemrix swine flu vaccination in 2009/10 and the sudden onset of narcolepsy in some individuals, Narcolepsy UK sets out its position with regard to the ongoing vaccination campaign against the SARS-CoV-2 virus.

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Important information about Modafinil and pregnancy

17 November 2020

The Medicines and Healthcare products Regulatory Agency have issued a drug safety update regarding the use of Modafinil during pregnancy:

"Modafinil potentially increases the risk of congenital malformations when used in pregnancy. Modafinil should not be used during pregnancy and women of childbearing potential must use effective contraception during treatment and for 2 months after stopping modafinil."

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Welcome to World Narcolepsy Day!

22 September 2020

Today (September 22nd) is the second annual World Narcolepsy Day. This day is dedicated to raising awareness of narcolepsy on a global scale. Established by 24 patient advocacy organisations across 6 continents in 2019, World Narcolepsy Day unites the international narcolepsy community to inspire action, increase public knowledge, and elevate the voices of the 3 million people living with narcolepsy worldwide.

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New Narcolepsy Awareness Video

16 September 2020

The Nederlandse Vereniging Narcolepsie have shared with us a link to a YouTube video for narcolepsy awareness they have recently uploaded. They have done this for World Narcolepsy Day 2020 (Sept. 22, 2020) as part of their ambition to raise awareness of narcolepsy on a global scale.

https://www.youtube.com/watch?v=TQsOXLYRBgo&feature=youtu.be

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Glimmer of Hope photography competition

10 September 2020

Same but Different is a not-for-profit organisation which uses the arts for positive social change by working in partnership with organisations, communities and individuals to highlight inequalities and bring communities closer together.

The Glimmer of Hope photography competition is an opportunity to visually express the hope that exists for people affected by rare disease. The deadline also happens to coincide with World Narcolepsy Day.

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Vaccine Injury Compensation

23 April 2020

Vaccine Injury Compensation for a child with narcolepsy caused by seasonal flu vaccine

We are pleased to be able to report the successful outcome of the first case of its kind, an English appeal tribunal has now found that a child’s narcolepsy was likely caused by the seasonal flu vaccine and consequently found that a vaccine injury compensation payment under the Vaccine Damage Payment Act 1979 is due to the child in question.

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Narcolepsy on "The One Show" (23rd Jan 2020)

23 January 2020

"The One Show"

Tonight (Thursday 23rd January)

BBC 1 @ 7pm

Our Chair, Matt O'Neill, will be live on the show talking about Narcolepsy with Dr Zoe Williams

We very much thank the young ladies also appearing.

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