Blog: In the media

node teaser

British Medical Journal article on Pandemrix vaccine

21 September 2018

BMJ, British Medical Journal, Ireland, pandemrix, vaccine

Publishing this link to today’s British Medical Journal article on the use of the Pandemrix vaccine.

Have to question where the BMJ have been for the last 9 years and why they have chosen to focus on events in the Republic of Ireland.

That story needs telling but so do they all. Perhaps it felt a bit too difficult to publicise here when we needed support.

Numbers quoted from our website are historic & we were not contacted to re-validate ahead of this article being published.

Read more about British Medical Journal article on Pandemrix vaccine

node teaser

Narcolepsy UK Conference 2018 presentation films now online

21 September 2018

conference, youtube, videos, films, clips, speakers, presentations, art, exhibition, creative

During the recent Narcolepsy UK 2018 Conference in Manchester, we were able to livestream some of the speakers on social media. This was great for keeping people not able to travel to be with us engaged with activities, but was not able to offer the full experience. In particular, slides were not visible and sound levels were very low due to the limitations of the equipment used.

Read more about Narcolepsy UK Conference 2018 presentation films now online

node teaser

Radio interview with Sleepyhead author Henry Nicholls

19 September 2018

Sleepyhead, Henry Nicholls, radio, interview

Narcolepsy UK trustee and science writer Henry Nicholls recently published a book, "Sleepyhead: Narcolepsy, Neuroscience and the Search for a Good Night". In relation to this he was interviewed, with 45 minutes of air time, talking about narcolepsy, cataplexy and sleep disorders on Jefferson Public Radio in the US yesterday morning. The full interview is here.

Read more about Radio interview with Sleepyhead author Henry Nicholls

node teaser

Scandal of Pandemrix in Republic of Ireland

11 August 2018

Ireland, pandemrix, vaccine, parliament

Questions continue to be raised surrounding the use of the Pandemrix vaccination in the Republic of Ireland:

http://claredaly.ie/latest-pandemrix-revelations-we-need-answers-from-government-and-justice-for-narcolepsy-sufferers/

Read more about Scandal of Pandemrix in Republic of Ireland

node teaser

Buzzfeed article covering swine flu vaccine and narcolepsy

23 February 2018

Buzzfeed, swine flu, pandemrix, NHS

Featured on Buzzfeed today is a well researched article on the "Pandemrix" swine flu vaccinations of 2009 and the (now) established link to developing narcolepsy. The article focusses on the experiences of NHS staff, who claim they were required or pressured into having the vaccination without being informed of the somewhat unusual circumstances regarding it's rushed roll out and relatively low level of testing. Some of these same staff who were adversely affected by developing narcolepsy symptoms have now been left to cope with what can be devastating life changes without support.

Read more about Buzzfeed article covering swine flu vaccine and narcolepsy

node teaser

Article in The Observer - Dreaming of a cure for narcolepsy

22 October 2017

Narcolepsy article published by The Observer.

Read more about Article in The Observer - Dreaming of a cure for narcolepsy

node teaser

NHS deny access to Wakix®

14 September 2017

Wakix, xyrem, Pitolisant, sodium oxybate, Lancet, NHS, NETAG, NTAG, Orphan Drug Status

NHS Northern Treatment Advisory Group seeks to deny access to Wakix® in error filled evidence summary.

Read more about NHS deny access to Wakix®

node teaser

Article in PharmaTimes

10 July 2017

PharmaTimes

July/August 2017 issue of PharmaTimes features an article on narcolepsy. Thanks to Trustee, Steve Jones, for approaching PharmaTimes & also the publication for taking an interest in Narcolepsy.

"PharmaTimes is the UK's leading pharmaceutical magazine, tracking the trends and issues that affect the industry here in the UK, in Europe and across the world. We deliver independent, authoritative and trustworthy content through impartial, balanced and informed opinion and analysis.