Blog: In the media

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Article in PharmaTimes

10 July 2017

July/August 2017 issue of PharmaTimes features an article on narcolepsy. Thanks to Trustee, Steve Jones, for approaching PharmaTimes & also the publication for taking an interest in Narcolepsy.

"PharmaTimes is the UK's leading pharmaceutical magazine, tracking the trends and issues that affect the industry here in the UK, in Europe and across the world. We deliver independent, authoritative and trustworthy content through impartial, balanced and informed opinion and analysis.

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Smart narcolepsy cushion earns Year-8 student a place at TeenTech finals

24 June 2017

Year-8 student Nicole Hirst has invented a travel support to be used by people with narcolepsy

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Muddy Trainers - Marathon Update

24 March 2017

Just over four weeks to go until our family marathon effort in support of Narcolepsy UK

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Houses of Parliament Debate today

8 March 2017

This morning we will be at the Houses of Parliament for a 30 minute debate on Narcolepsy secured by Dinah Forbes via her MP, Tracy Brabin.

We will report back later today but you will be able to follow the meeting live on BBC Parliament.

Following this, we will be joining Di Forbes & Tracy Brabin in a meeting with Nicola Blackwood, Parliamentary Under-Secretary of State for Public Health and Innovation in the Department of Health.

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Houses of Parliament Debate - follow up

8 March 2017

Narcolepsy UK will be relentless in their pursuit of all of the issues raised in Parliament today. This post summarises the points raised.

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In the News: Real Life Sleeping Beauty

27 January 2017

A positive news story highlighting the case of Annabelle Hutt, a young lady of 21 who has narcolepsy with cataplexy.

Click here for the full story

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Sleep disorder sufferers await ruling over role of swine flu jab

24 January 2017

On behalf of Narcolepsy UK, I have contributed personally to evidence for all three of the cases quoted here, know the families concerned and been through some of the sad events that have transpired and are mentioned in this article. I will, yet again, be in the court this week to hear on what tenuous basis the DWP think they can appeal a decision that they have already been overturned on twice. The Vaccine Damage Payment Act of 1979, as the government have always been quick to point out, is not a compensation scheme and I agree with them on that point.

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