12th August 2019
We believe that people with narcolepsy and their families and friends have the same rights to a full and rounded life as any other person without having to make this happen. The Charter is a written statement of these rights based on responses to an online survey of 302 people with narcolepsy and 149 supporters undertaken by Adelphi Research. The survey was made possible with support from Adelphi Research, Lincoln Medical Limited, The National Lottery Community Fund and UCB Pharma.
Narcolepsy UK will present the Charter at our annual conference in September 2019 and in smaller presentations and workshops at regional and local level.
Click here to find out more and to see the Charter document in full