Response to inquest result after death of narcolepsy sufferer

node leader
11 August 2016

All Katie ever wanted was to work with children and it was this desire that led to her employer requiring her to have the Pandemrix (H1N1) influenza vaccination in 2009.

One simple life decision led to a domino effect that led to Katie’s death on 23 September 2014. This vaccination, and delays in medical treatment combined with a lack of understanding of the extremely debilitating nature of narcolepsy all contributed to this tragic situation.

Yet again we see Narcolepsy referred to, by the coroner, as a “rare chronic sleep disorder” rather than the neurological disorder that we all know it to be.

Please join us in expressing our deepest sympathy to Katie’s family at what remains an extremely difficult time for them.

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