21st September 2019
We are attending our first World Sleep event and have sent Matt to showcase your #NUKCharter (Narcolepsy UK have a booth in the main exhibition hall 23rd-25th September) and take part in an official event on Sunday, September 22nd, to mark the inaugural #WorldNarcolepsyDay to which he has dedicated a huge amount of personal effort in helping to make happen along with Julie Flygare of Project Sleep and other participating groups from around the world.
Matt will be talking about the Charter at the #WorldNarcolepsyDay Forum taking place this Sunday, Sept. 22 at 5:30p.m. Pacific Time at #WorldSleep2019!
Read the Charter, then sign up to it and pass it on: https://www.narcolepsy.org.uk/resources/narcolepsy-charter
Let’s show some support for our global community and share the charter and #WorldNarcolepsyDay across social media as much as possible over the next few days.
World Sleep 2019 takes place from September 20-25, 2019 at the Vancouver Convention Centre in Vancouver, BC, Canada and today, Saturday 21st September, we will be attending a public education event organised by Wake Up Narcolepsy – see below.
Wake Up Narcolepsy Education Day at Sleep Expo 2019
In Collaboration with The Hypersomnia Foundation and World Sleep 2019
Summary
The number of patients presenting with symptoms of narcolepsy and hypersomnia disorders is increasing. This demonstrates a growing need to provide practitioners with an in-depth grasp of how these patients present and the trajectory of their symptoms. It also underlines the need for practitioners to be aware of specific treatment strategies and to understand when it is appropriate to refer patients to other sleep related specialists.
The overriding objective of the narcolepsy and hypersomnia education event is to provide an extensive and detailed knowledge base so that health care providers have the tools to make accurate diagnoses and informed decisions regarding treatment options.
The program will include the latest research, presented by leading experts in the field of narcolepsy and hypersomnias, as well as a panel discussion bringing together patient and practitioner perspectives related to the material presented.
Learning Objectives
Upon completion of this CME activity, participants should be able to:
- Identify the symptoms of narcolepsy and IH and the circumstances where a specific sleep disorder test may be indicated
- Make a differential diagnosis of narcolepsy and IH
- Be aware of pharmacological treatment options in the management of excessive daytime sleepiness
- Increase their understanding of the psychosocial, educational and economic impact of narcolepsy and IH
- Understand the particular challenges of treating and caring for students, adolescents and other patients facing life transitions while managing the symptoms of narcolepsy or hypersomnia
Target Audience
Health care providers with early or intermediate level knowledge of narcolepsy and idiopathic hypersomnia disorders, practicing sleep specialists, pediatricians, nurses, psychologists, sleep lab technicians, sleep advocates
