Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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Glimmer of Hope photography competition

10 September 2020

Same but Different is a not-for-profit organisation which uses the arts for positive social change by working in partnership with organisations, communities and individuals to highlight inequalities and bring communities closer together.

The Glimmer of Hope photography competition is an opportunity to visually express the hope that exists for people affected by rare disease. The deadline also happens to coincide with World Narcolepsy Day.

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Thanks to Aimee for a big fundraising effort

8 September 2020

We would like to congratulate one of our young volunteers, Aimee Stephen, on raising £1,487.29 for the charity by hosting an 80's night/disco and setting up raffle stalls at various local galas.

Well done Aimee and thank you for your support!

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No 2020 Conference, but World Narcolepsy Day is still happening

2 September 2020

We are very sorry to confirm that due to the ongoing pandemic situation and the need to protect the health and safety of the public, Narcolepsy UK are unable to host a conference this year. The annual conference has been a feature of Narcolepsy UK activity for decades and we did not take this decision lightly. We are aware that the annual conference is a great source of support to many people, and something that many look forward to. We hope to be able to welcome you all again next year.

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Obituary of William Dement

4 August 2020

Sleep scientist William “Bill” Dement, often referred to as “the father of sleep medicine”, has died at the age of 91. During his lifetime, Dement made many contributions that have transformed research into narcolepsy, he helped create the field of sleep medicine and his activism began a wider discussion about sleep and society.

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DVLA Covid Update

2 August 2020

As a result of the impact of the COVID19 pandemic, Ministers at the Department for Transport have agreed to adopt a temporary measure to assist drivers in complying with the driving licence renewal requirements.

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Has the pandemic made your sleep worse?

22 June 2020

COVID-19 has caused disruption to many aspects of our lives and sleep is no exception. In a recent survey carried out by researchers at King’s College London and Ipsos MORI, two thirds of people report that their sleep has got worse since lockdown in March. Around half of the population find their sleep more disturbed and just over one third of people surveyed are having more vivid dreams than normal.

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A Message of Thanks

31 May 2020

1-7 June 2020 is officially Volunteers' Week. Matt O'Neill, Chair of the board of Narcolepsy UK, has a message of thanks to all the volunteers who help us in our mission to meet the needs of the Narcolepsy and Idiopathic Hypersomnia community. This is especially true in these challenging times of global pandemic.

 

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New online support meeting added - Sundays

27 May 2020

Regular Support Group chats upcoming:

(please note this list replaces any previously advertised meeting details)

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Regular online support group chats - updated

10 May 2020

Regular Support Group chats upcoming:

(please note this list replaces any previously advertised meeting details)

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