On behalf of Narcolepsy UK, I have contributed personally to evidence for all three of the cases quoted here, know the families concerned and been through some of the sad events that have transpired and are mentioned in this article. I will, yet again, be in the court this week to hear on what tenuous basis the DWP think they can appeal a decision that they have already been overturned on twice. The Vaccine Damage Payment Act of 1979, as the government have always been quick to point out, is not a compensation scheme and I agree with them on that point.
At our last annual conference in Manchester, we told you that the board of Narcolepsy UK had supported an application by our chair, Matt O’Neill, to join the board of the Neurological Alliance.
We are delighted to let you know that his application was successful and he was elected to the board of the Neurological Alliance at their recent AGM in November with the final formalities being completed today.
The Pandemrix Narcolepsy European Alliance will tell the European Commissioner for Health and Food Safety next week that he needs to launch a pan-EU public inquiry into the cases of narcolepsy that were triggered by use of the Pandemrix vaccine to treat the 2009/10 swine flu outbreak.