Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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Changes of personnel

27 September 2015

Grants Fundraiser Clare Baldwin has left the role after four years, but won’t be saying goodbye to Narcolepsy UK, as she has joined the Board of Trustees.

Clare said: “The job has been hectic, challenging but truly rewarding. It’s a tough fundraising climate, I’ve had to call upon my most compelling letter writing skills and persuasive telephone manner to beat other great little charities to shrinking pots of money.

“But what a great boost when a trust, foundation or the Lottery puts its faith in – and cash behind – our work supporting the narcolepsy community.

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Important ruling in Pandemrix case

27 September 2015

The link between an upsurge in the number of cases of narcolepsy and the Pandemrix swine flu vaccine has been acknowledged by the government, and opened the door to claims for compensation under the Vaccine Damage Payments Scheme. That scheme is a statutory regime under which anyone found to have suffered a severe disability as a result of certain vaccines is entitled to an award of £120,000.

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Big Meet-Up celebrates European Narcolepsy Awareness Day 2015

11 May 2015

NARCOLEPSY UK Big Meet Up was our way of celebrating European Narcolepsy Awareness Day 2015.

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A day full of positives in Germany

11 May 2015

Narcolepsy UK chairman Matt O’Neill reports on what was a fruitful trip to Germany for European Narcolepsy Day.

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Narcolepsy UK chairman, BBC radio interview

8 March 2015

Narcolepsy UK chairman Matt O'Neill was interviewed as part of a program on sleep disorders for BBC Three Counties Radio show "Shrink Wrapped". Original air date 8th March 2015.

You can listen to the programme in full here

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