Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.
DVLA issues updated guidance to doctors
This morning we will be at the Houses of Parliament for a 30 minute debate on Narcolepsy secured by Dinah Forbes via her MP, Tracy Brabin.
We will report back later today but you will be able to follow the meeting live on BBC Parliament.
Following this, we will be joining Di Forbes & Tracy Brabin in a meeting with Nicola Blackwood, Parliamentary Under-Secretary of State for Public Health and Innovation in the Department of Health.
Narcolepsy UK will be relentless in their pursuit of all of the issues raised in Parliament today. This post summarises the points raised.
On 8 February 2017 Narcolepsy UK attended a meeting at the DVLA in Swansea.
Over £180 raised, and one lucky winner.
We have created a range of new poster designs, which are now available from our website to be printed for display wherever you might want to help spread the word and raise awareness.
Recent news on the UK Supreme Court ruling, European Commission views on the Pandemrix issue, and the ex gratia scheme for provision of Xyrem to Pandemrix personal injury claimants.
Dream Talking Weekend. Sat 18th & Sun 19th March 2017. Want to join us?
The Lancet Neurology today published the results from a Phase III controlled trial of pitolisant in severely affected narcoleptic patients with cataplexy.
A positive news story highlighting the case of Annabelle Hutt, a young lady of 21 who has narcolepsy with cataplexy.
Click here for the full story
Narcolepsy UK exists for the benefit, relief and aid of persons suffering from narcolepsy.
Find out more about the history, management and financials of the charity here.
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