Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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Are you in Lincolnshire? Can you help?

11 January 2018

Do you live in Lincolnshire? Could you help shape the future provision of medical care for neurological conditions like narcolepsy in your area?

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30 Walks in 30 Days - Raise Money for Narcolepsy UK

11 January 2018

2018 sees the third year of our “30 walks in 30 days” fundraising campaign.

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To our staff and volunteers: Thank you!

19 December 2017

Thanks to all the charity's staff and volunteers for their hard work in 2017

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Benefits helpline temporarily not available

8 December 2017
helpline, benefits, advice

Our helpline service – the capacity of which is always stretched to the limit - has recently experienced an exceptional number of requests for assistance in relation to benefit claims. If you have already sent in a request for assistance we hope to be able to fulfill that request but are currently reviewing this and hope to be able to update you over the coming days.

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Conference 2017 - The best ever?

11 October 2017
conference

Another successful annual conference for Narcolepsy UK.

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Colchester meeting cancelled

10 October 2017
meet up, Networking, support group, Colchester

Our apologies, but the meet up that had been scheduled for 14th October in Colchester has had to be cancelled due to unforeseen circumstances. Keep an eye on the website for future meet ups and other events.

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NHS deny access to Wakix®

14 September 2017
Wakix, xyrem, Pitolisant, sodium oxybate, Lancet, NHS, NETAG, NTAG, Orphan Drug Status

NHS Northern Treatment Advisory Group seeks to deny access to Wakix® in error filled evidence summary.

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Successful conference in Scotland

13 September 2017

On Saturday 9th September 2017 Narcolepsy UK delivered a Conference in Glasgow, kindly funded by Foundation Scotland.

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Narcolepsy UK Annual Conference, 7/8 Oct 2017 (Newbury, Berks) - Charting Our Way Ahead

7 August 2017
conference

Our Annual Conference, 7/8 Oct 2017 - Charting Our way Ahead - links to plans to be released at conference to help bring narcolepsy to the attention of many more sectors of government, medical professionals, the workplace, education, and so on. This is your opportunity to be in at the start of something new and inspiring.

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