Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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No 2020 Conference, but World Narcolepsy Day is still happening

2 September 2020
conference, COVID, Covid-19, coronavirus, World Narcolepsy Day, WND

We are very sorry to confirm that due to the ongoing pandemic situation and the need to protect the health and safety of the public, Narcolepsy UK are unable to host a conference this year. The annual conference has been a feature of Narcolepsy UK activity for decades and we did not take this decision lightly. We are aware that the annual conference is a great source of support to many people, and something that many look forward to. We hope to be able to welcome you all again next year.

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Obituary of William Dement

4 August 2020
REM, SOREMP, MSLT, Dement, sleep medicine, narcolepsy, obituary

Sleep scientist William “Bill” Dement, often referred to as “the father of sleep medicine”, has died at the age of 91. During his lifetime, Dement made many contributions that have transformed research into narcolepsy, he helped create the field of sleep medicine and his activism began a wider discussion about sleep and society.

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DVLA Covid Update

2 August 2020
DVLA, COVID, Covid-19, driving

As a result of the impact of the COVID19 pandemic, Ministers at the Department for Transport have agreed to adopt a temporary measure to assist drivers in complying with the driving licence renewal requirements.

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Has the pandemic made your sleep worse?

22 June 2020
pandemic, COVID, insomnia, CBT

COVID-19 has caused disruption to many aspects of our lives and sleep is no exception. In a recent survey carried out by researchers at King’s College London and Ipsos MORI, two thirds of people report that their sleep has got worse since lockdown in March. Around half of the population find their sleep more disturbed and just over one third of people surveyed are having more vivid dreams than normal.

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A Message of Thanks

31 May 2020
Volunteers Week, volunteer, Matt O'Neill

1-7 June 2020 is officially Volunteers' Week. Matt O'Neill, Chair of the board of Narcolepsy UK, has a message of thanks to all the volunteers who help us in our mission to meet the needs of the Narcolepsy and Idiopathic Hypersomnia community. This is especially true in these challenging times of global pandemic.

 

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New online support meeting added - Sundays

27 May 2020
support group, Liam

Regular Support Group chats upcoming:

(please note this list replaces any previously advertised meeting details)

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Regular online support group chats - updated

10 May 2020
support group, Liam

Regular Support Group chats upcoming:

(please note this list replaces any previously advertised meeting details)

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Regular online support group chats

29 April 2020
support group

Regular Support Group chats upcoming:

Adele Bishop   -   Thursdays @ 5pm via Messenger

Heather Korbey   -   Tuesdays @ 3pm via Messenger

-   Wednesdays @ 7.30am via Messenger

Helen Strongman   -   Wednesdays @ 7.30pm via Zoom

Kerly Joy Bowga   -   Wednesdays @ 1pm via Zoom

-   Fridays @ 6pm via Zoom

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Vaccine Injury Compensation

23 April 2020
vaccination, vaccine

Vaccine Injury Compensation for a child with narcolepsy caused by seasonal flu vaccine

We are pleased to be able to report the successful outcome of the first case of its kind, an English appeal tribunal has now found that a child’s narcolepsy was likely caused by the seasonal flu vaccine and consequently found that a vaccine injury compensation payment under the Vaccine Damage Payment Act 1979 is due to the child in question.

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