Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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Big step forward for specialist sleep unit in Wales

25 July 2017

Impending establishment of specialist sleep centre will lead to improved service to narcolepsy patients in Wales.

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Article in PharmaTimes

10 July 2017

July/August 2017 issue of PharmaTimes features an article on narcolepsy. Thanks to Trustee, Steve Jones, for approaching PharmaTimes & also the publication for taking an interest in Narcolepsy.

"PharmaTimes is the UK's leading pharmaceutical magazine, tracking the trends and issues that affect the industry here in the UK, in Europe and across the world. We deliver independent, authoritative and trustworthy content through impartial, balanced and informed opinion and analysis.

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In case you missed it ...

26 June 2017

Here's a summary of recent additions to our website

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Is Wakix® the new Xyrem® ?

25 June 2017

Is Wakix® the new Xyrem® ?

I do not ask this because of any similarities between what these two medications can do for people with narcolepsy but for other, far more frustrating reasons. Like Xyrem®, Wakix® has orphan drug status, its effects are not well understood, it is perceived as expensive and NHS adoption is slow because it is relatively new, despite the relevant NICE guidelines.

On May 23rd, 2016, I wrote the following paragraph:

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Smart narcolepsy cushion earns Year-8 student a place at TeenTech finals

24 June 2017

Year-8 student Nicole Hirst has invented a travel support to be used by people with narcolepsy

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Juan reaches Land's End

6 June 2017

Juan makes it to Land's End

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London to Brighton - Another great effort!

5 June 2017

Our thanks to Louise, another one of our gallant band of fundraisers, who has walked from London to Brighton in support of Narcolepsy UK.

That's 21 hours of walking over 2 days! Louise tells us it was one of the hardest physical endurance events she has ever done, but worth every penny in view of the sponsorship of around £750 she has raised.

Well done, Louise, and thank you from all at Narcolepsy UK!

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