Blog

Keep up to date with all the latest news from the world of narcolepsy, and some of the things we are doing to help.

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Benefits helpline temporarily not available

8 December 2017
helpline, benefits, advice

Our helpline service – the capacity of which is always stretched to the limit - has recently experienced an exceptional number of requests for assistance in relation to benefit claims. If you have already sent in a request for assistance we hope to be able to fulfill that request but are currently reviewing this and hope to be able to update you over the coming days.

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Conference 2017 - The best ever?

11 October 2017
conference

Another successful annual conference for Narcolepsy UK.

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Colchester meeting cancelled

10 October 2017
meet up, Networking, support group, Colchester

Our apologies, but the meet up that had been scheduled for 14th October in Colchester has had to be cancelled due to unforeseen circumstances. Keep an eye on the website for future meet ups and other events.

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NHS deny access to Wakix®

14 September 2017
Wakix, xyrem, Pitolisant, sodium oxybate, Lancet, NHS, NETAG, NTAG, Orphan Drug Status

NHS Northern Treatment Advisory Group seeks to deny access to Wakix® in error filled evidence summary.

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Successful conference in Scotland

13 September 2017

On Saturday 9th September 2017 Narcolepsy UK delivered a Conference in Glasgow, kindly funded by Foundation Scotland.

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Narcolepsy UK Annual Conference, 7/8 Oct 2017 (Newbury, Berks) - Charting Our Way Ahead

7 August 2017
conference

Our Annual Conference, 7/8 Oct 2017 - Charting Our way Ahead - links to plans to be released at conference to help bring narcolepsy to the attention of many more sectors of government, medical professionals, the workplace, education, and so on. This is your opportunity to be in at the start of something new and inspiring.

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Big step forward for specialist sleep unit in Wales

25 July 2017
sleep centre, Wales

Impending establishment of specialist sleep centre will lead to improved service to narcolepsy patients in Wales.

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Article in PharmaTimes

10 July 2017
PharmaTimes

July/August 2017 issue of PharmaTimes features an article on narcolepsy. Thanks to Trustee, Steve Jones, for approaching PharmaTimes & also the publication for taking an interest in Narcolepsy.

"PharmaTimes is the UK's leading pharmaceutical magazine, tracking the trends and issues that affect the industry here in the UK, in Europe and across the world. We deliver independent, authoritative and trustworthy content through impartial, balanced and informed opinion and analysis.

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In case you missed it ...

26 June 2017

Here's a summary of recent additions to our website

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