Takeda Announces Positive Results from Two Phase 3 Studies of Oveporexton (TAK-861) in Narcolepsy Type 1
Takeda have announced, on 14 July 2025, positive progress in the trials of their drug Oveporexton (TAK-861) for narcolepsy type 1. This drug is potentially an oral “orexin receptor 2 selective agonist”. Narcolepsy type 1 (ie narcolepsy with cataplexy) is caused by the loss of orexin-producing neurons in the brain. Orexin agonists are designed to […]
Research of Adolescents Living with Narcolepsy
Ellyn Berman-Jones, a doctoral student in educational psychology at Cardiff University, is researching how adolescents living with narcolepsy experience and navigate their journal through education. She has asked us to share this recruitment poster with our network. She is looking for adolescents with narcolepsy aged 12-19, who attend (or have attended) a local-authority secondary school. […]
Update on progress on Narcolepsy drugs
Interesting market-facing updates on progress with Orexin receptor 2 (OXR2) agonists Two parties involved in research & clinical trials into targeted treatments for narcolepsy and idiopathic hypersomnia made announcements on progress and timelines last week. Its still far too early to be able to indicate when, if the work is successful, we will see […]
Disability Benefit Cuts Letter to the Chancellor
📢 We’re joining @Scope to urge the Chancellor to reconsider potential cuts to disability benefits. It would have a catastrophic impact on disabled people, pushing even more disabled households into poverty. Read our open letter to the Chancellor ⬇️ The cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity […]
WE NEED YOU
Join us in coordinating meet ups around the UK for people with narcolepsy. It is simple – all you need to do is find a suitable place to meet-up, and we will take care of letting everyone know the time, date, and location. By hosting a meet-up, you will be providing a fantastic opportunity […]
We Are Now Open
If you have a specific narcolepsy or idiopathic hypersomnia related issue on which you need advice you can: Call – 0345 450 0394 or Email – info@narcolepys.org.co.uk
Over The Wall Camp
Over The Wall Camp is a magical place for children and young people with long-term health conditionsAs a result of long-term health conditions, more than 1 in 10 children* in the UK can be denied a carefree childhood, and this number is growing**. For many of these children, quality of life may be adversely affected […]
World Narcolepsy Day
World Narcolepsy Day There are many ways you can get involved in World Narcolepsy Day, 22nd September 2024. World Narcolepsy Day is the day where the world comes together to raise awareness of narcolepsy so why not join in and help show the world that narcolepsy affects people everywhere! Social media You can take part […]
NEW SURVEY August 2024
Evolve Fieldwork Narcolepsy Study UK applicants only 2nd August 2024 Narcolepsy UK’s Charter describes how we work collectively to achieve our vision of a society that provides the respect, care and support that people with narcolepsy and their carers deserve and should expect. We recognise the importance of research in achieving these goals, and […]
Important News re Medication Shortages
Navigating Medicine Shortages: How Narcolepsy UK is advocating for you Matt O’Neill shares an UPDATE on this vital topic:- We know that recent shortages of medications used to treat narcolepsy and ADHD due to ingredient shortages, manufacturing problems and a general surge in demand have created significant challenges for many of you. These […]