Help for families

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Having narcolepsy impacts on every aspect of a child's life, and the lives of parents and other close family members.

In this article, we list some sources of information that may be helpful to families including a child with narcolepsy.

The official UK Government website www.gov.uk includes numerous resources that may be helpful. For instance:

A charity specifically focused on families with disabled children is Contact, whose website contains extensive information on benefits, children's social care, education, and local support groups.

The website of Disability Rights UK contains may useful resources, including a large number of downloadable Factsheets and Guides as well as an online shop where more comprehensive booklets are available for purchase, some at very modest cost.

Of course, our own Narcolepsy UK website contains other resource pages that will be helpful to you, for instance: