Having narcolepsy impacts on every aspect of a child's life, and the lives of parents and other close family members.
In this article, we list some sources of information that may be helpful to families including a child with narcolepsy.
The official UK Government website www.gov.uk includes numerous resources that may be helpful. For instance:
- Help if you have a disabled child contains details of services that may be available from your local council to help with your child's needs.
- Disability Living Allowance (DLA) for children may help with the extra costs of looking after a child with a disability such as narcolepsy.
- Disability rights in education outlines the rights of disabled students and the obligation of education providers to make adjustments to ensure that disabled students are properly supported.
- Help with home to school transport provides access to your local council's website, with information about help with the cost of travel to school and other types of financial help and support.
The website of Disability Rights UK contains may useful resources, including a large number of downloadable Factsheets and Guides as well as an online shop where more comprehensive booklets are available for purchase, some at very modest cost.
Of course, our own Narcolepsy UK website contains other resource pages that will be helpful to you, for instance: