Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Cataplexy

Sudden muscular weakness triggered by strong emotions - weakening of the facial muscles, weakness at the knees, or total collapse on the floor.

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Excessive Daytime Sleepiness

An irresistible urge to sleep at inappropriate times during the day.

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How is narcolepsy diagnosed?

In the past, it was common for people with symptoms of narcolepsy to go undiagnosed, sometimes for many years. With greater recognition of the condition, and greater awareness amongst the medical profession, the situation is improving, but misdiagnosis of narcolepsy, and thus inappropriate treatment, is still relatively common.

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How is narcolepsy treated?

Treatment is focused on controlling the symptoms of narcolepsy in a way that allows the patient to live as normal a life as possible.

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Seeking medical help

Seeking medical help when you first develop symptoms of narcolepsy can be very daunting, but your first point of contact should be your regular GP.

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What causes narcolepsy?

Narcolepsy is an auto-immune disorder, commonly caused by an infection like a sore throat.  Recently swine flu vaccination caused an upsurge in cases.

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What is narcolepsy?

Learn what narcolepsy is, what causes it and the key symptoms

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Who does narcolepsy affect?

How common narcolepsy is, who it affects, and when it occurs

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Epworth Sleepiness Scale

Assess how likely you are to fall asleep in everyday situations - the first step to a diagnosis.

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UK Sleep Centres

Centres around the UK with specialist experience of sleep disorders, including narcolepsy.

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