Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Guide to Benefits

Having narcolepsy can have a significant impact on your quality of life, and may affect your financial situation. Your ability to earn an income may go down because of the effects of your health problems, so it is important to find out if there are any benefits you can claim. Even if you are still working there may be other benefits you are entitled to.

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Narcolepsy and driving

Many people with narcolepsy are able to drive. However, narcolepsy is a condition that may affect your ability to drive safely, and you will be permitted to drive only if DVLA is satisfied that your condition is controlled well enough that allowing you to drive will not cause an unacceptable risk to you and to other people.

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Narcolepsy and education

Although narcolepsy can have a major indirect impact on concentration, attention span and short term memory, it does not affect cognition or intelligence directly. However, without measures being taken to mitigate its effects, a diagnosis of narcolepsy may have a significant impact on a student's ability to learn.

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Narcolepsy and work

Although narcolepsy can have a major indirect impact on concentration, attention span and short term memory, it does not affect cognition or intelligence directly. Provided that appropriate allowances are made for their sleep disorder, many people with narcolepsy are able to work, though there are obviously certain occupations that are not open to them.

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Accident prevention and safety

Having narcolepsy may expose you to hazards that do not apply to other people. With that in mind, protect yourself by taking simple precautions.

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Narcolepsy and holidays

If you suffer from narcolepsy, going on holiday may present difficulties that simply do not occur for other people.

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Medication in schools

Many young people with narcolepsy need to take doses of medication while at school. Particularly for younger children, who have not reached an age at which they are ready to take care of and be responsible for their own medication, it is vital that the school has an appropriate policy and adequate procedures in place.

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Help for families

Having narcolepsy impacts on every aspect of a child's life, and the lives of parents and other close family members.

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The Narcolepsy Charter

Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.