Having narcolepsy can have a significant impact on your quality of life, and may affect your financial situation. Your ability to earn an income may go down because of the effects of your health problems, so it is important to find out if there are any benefits you can claim. Even if you are still working there may be other benefits you are entitled to.
If you are referred to hospital or other NHS premises for NHS specialist treatment or diagnostic tests by your doctor, dentist or other health professional, you may be able to claim a refund of reasonable travel costs.
The following items can be useful to supply with any benefit applications relating to narcolepsy. It will be helpful to you if you can gather as many of them as possible to include with your application.
Many people with narcolepsy are prescribed multiple medications, and – unless you are entitled to free prescriptions - the cost can be substantial. It may be cheaper to buy a prescription prepayment certificate (PPC) – effectively a prescription "season ticket".
A PPC covers all of your NHS prescriptions, including NHS dental prescriptions, no matter how many items you need.
One of the most important functions of our Helpline is to provide assistance with claims for benefits. However, in order for them to get the most from the Helpline, we do need clients making claims for benefits to ensure that they are ready to make their application.
Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.