Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Guide to Benefits

Having narcolepsy can have a significant impact on your quality of life, and may affect your financial situation. Your ability to earn an income may go down because of the effects of your health problems, so it is important to find out if there are any benefits you can claim. Even if you are still working there may be other benefits you are entitled to.

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Grants to Individuals

Charitable Trusts are an important source of funds for organisation like Narcolepsy UK.  Some Trusts will also consider making donations to individuals.

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Help with NHS travel costs

If you are referred to hospital or other NHS premises for NHS specialist treatment or diagnostic tests by your doctor, dentist or other health professional, you may be able to claim a refund of reasonable travel costs.

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Free prescriptions and help with health costs

For many people with narcolepsy, the costs of prescriptions may be considerable.

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Benefit application checklist

The following items can be useful to supply with any benefit applications relating to narcolepsy. It will be helpful to you if you can gather as many of them as possible to include with your application.

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Prescription Prepayment Certificates

Many people with narcolepsy are prescribed multiple medications, and – unless you are entitled to free prescriptions - the cost can be substantial. It may be cheaper to buy a prescription prepayment certificate (PPC) – effectively a prescription "season ticket".

A PPC covers all of your NHS prescriptions, including NHS dental prescriptions, no matter how many items you need.

There are two PPC options to choose from:

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Helpline - Help us to help you

One of the most important functions of our Helpline is to provide assistance with claims for benefits. However, in order for them to get the most from the Helpline, we do need clients making claims for benefits to ensure that they are ready to make their application.

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Assistance and safety when travelling

For people with narcolepsy, travelling on public transport may present particular difficulties: getting off at the right stop, making a connection, etc etc.

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Narcolepsy Charter

Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter is a written statement of the rights of people with narcolepsy and their carers. It sets out the basic rights that people with narcolepsy and their carers deserve and should expect.

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Letter template - proof of narcolepsy

Sometimes you may need may a doctor's letter as evidence of your diagnosis of narcolepsy, for instance to support an application for benefits.