Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Pandemrix narcolepsy

In 2010 there was a startling increase in narcolepsy across the UK and northern Europe. With new cases developing on a weekly basis, some doctors described it as an epidemic.

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What causes narcolepsy?

Narcolepsy is an auto-immune disorder, commonly caused by an infection like a sore throat.  Recently swine flu vaccination caused an upsurge in cases.

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Sodium oxybate (Xyrem) – Ex gratia provision to victims of Pandemrix

Scheme for ex gratia funding of Xyrem to people who have made personal injury claims after developing narcolepy caused by Pandemrix vaccine

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Narcolepsy Charter

Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.