Although narcolepsy can have a major indirect impact on concentration, attention span and short term memory, it does not affect cognition or intelligence directly. However, without measures being taken to mitigate its effects, a diagnosis of narcolepsy may have a significant impact on a student's ability to learn.
This research programme is investigating school performance and well-being in children with narcolepsy aged 8-16 years old. The project has been set up by The University of Leeds and has received ethical approval from the School of Psychology's Research Ethics Committee (ref: 15-0198, date: 03.08.15). The research is taking place in the United Kingdom and in the Republic of Ireland.
Many young people with narcolepsy need to take doses of medication while at school. Particularly for younger children, who have not reached an age at which they are ready to take care of and be responsible for their own medication, it is vital that the school has an appropriate policy and adequate procedures in place.
Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.