Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Narcolepsy and education

Although narcolepsy can have a major indirect impact on concentration, attention span and short term memory, it does not affect cognition or intelligence directly. However, without measures being taken to mitigate its effects, a diagnosis of narcolepsy may have a significant impact on a student's ability to learn.

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Pandemrix narcolepsy

In 2010 there was a startling increase in narcolepsy across the UK and northern Europe. With new cases developing on a weekly basis, some doctors described it as an epidemic.

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Accident prevention and safety

Having narcolepsy may expose you to hazards that do not apply to other people. With that in mind, protect yourself by taking simple precautions.

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Narcolepsy and holidays

If you suffer from narcolepsy, going on holiday may present difficulties that simply do not occur for other people.

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The Paediatric Narcolepsy Project

This research programme is investigating school performance and well-being in children with narcolepsy aged 8-16 years old. The project has been set up by The University of Leeds and has received ethical approval from the School of Psychology's Research Ethics Committee (ref: 15-0198, date: 03.08.15). The research is taking place in the United Kingdom and in the Republic of Ireland.

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Medication in schools

Many young people with narcolepsy need to take doses of medication while at school. Particularly for younger children, who have not reached an age at which they are ready to take care of and be responsible for their own medication, it is vital that the school has an appropriate policy and adequate procedures in place.

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The emotional impact of narcolepsy

The emotional impact of narcolepsy: frustration, anger and irritation can be difficult to deal with.

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Help for families

Having narcolepsy impacts on every aspect of a child's life, and the lives of parents and other close family members.