Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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What is narcolepsy?

Learn what narcolepsy is, what causes it and the key symptoms

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UK Sleep Centres

Centres around the UK with specialist experience of sleep disorders, including narcolepsy.

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Research snapshot: What does the future hold for narcolepsy treatment?

Everyone with narcolepsy knows that, as things stand, there is no cure for the condition.  Instead, we rely on medication to control the symptoms, though for many people those drugs do not work well enough or have adverse side-effects.  So what does the future hold?  Will there be new and more effective treatments?  What are scientists around the world working on to help us?

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The Paediatric Narcolepsy Project

This research programme is investigating school performance and well-being in children with narcolepsy aged 8-16 years old. The project has been set up by The University of Leeds and has received ethical approval from the School of Psychology's Research Ethics Committee (ref: 15-0198, date: 03.08.15). The research is taking place in the United Kingdom and in the Republic of Ireland.

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Clinical trial - single dose sodium oxybate

Flamel (Part of the Avadel Pharmaceuticals), are looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of EDS and cataplexy in narcolepsy.

FT218 is dosed once at bedtime unlike the currently marketed formulation of sodium oxybate (Xyrem®) which needs to be taken twice nightly, once at bedtime and then again 2.5 – 4 hours later.

Patients with a diagnosis of narcolepsy who meet the study criteria may be eligible to participate in our clinical trial.