Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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What is narcolepsy?

Learn what narcolepsy is, what causes it and the key symptoms

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UK Sleep Centres

Centres around the UK with specialist experience of sleep disorders, including narcolepsy.

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The Paediatric Narcolepsy Project

This research programme is investigating school performance and well-being in children with narcolepsy aged 8-16 years old. The project has been set up by The University of Leeds and has received ethical approval from the School of Psychology's Research Ethics Committee (ref: 15-0198, date: 03.08.15). The research is taking place in the United Kingdom and in the Republic of Ireland.

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Clinical trial - single dose sodium oxybate

Flamel (Part of the Avadel Pharmaceuticals), are looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of EDS and cataplexy in narcolepsy.

FT218 is dosed once at bedtime unlike the currently marketed formulation of sodium oxybate (Xyrem®) which needs to be taken twice nightly, once at bedtime and then again 2.5 – 4 hours later.

Patients with a diagnosis of narcolepsy who meet the study criteria may be eligible to participate in our clinical trial.

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The Narcolepsy Charter

Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.