In order for us to continue to organise conferences and events to benefit people with narcolepsy, it is vital that we are able to show to potential donors that our events are of value to our community.
Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.
In the run-up to World Narcolepsy Day 2020, Narcolepsy UK invited people with narcolepsy and their families to contribute their stories of what it's like to live with narcolepsy or with a person with narcolepsy.
Thank you to all those brave enough to share your experiences. Some of the stories make for hard reading and some are uplifting, but we hope that together they capture the spectrum nature of this disorder.