Resources

Our aim is to make this the “go to” place for narcolepsy information. Use the filters to find everything you need.

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Assistance scheme at UK airports

A scheme to assist air travellers with hidden disabilities is now operating at a number of UK airports.

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Prescription Prepayment Certificates

Many people with narcolepsy are prescribed multiple medications, and – unless you are entitled to free prescriptions - the cost can be substantial. It may be cheaper to buy a prescription prepayment certificate (PPC) – effectively a prescription "season ticket".

A PPC covers all of your NHS prescriptions, including NHS dental prescriptions, no matter how many items you need.

There are two PPC options to choose from:

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Narcolepsy and dental health

Having narcolepsy can have knock-on effects on oral health and dental care.

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Modafinil and contraception

Modafinil, one of the most commonly used medications for narcolepsy, lessens the effectiveness of the contraceptive pill.

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Help for families

Having narcolepsy impacts on every aspect of a child's life, and the lives of parents and other close family members.

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Helpline - Help us to help you

One of the most important functions of our Helpline is to provide assistance with claims for benefits. However, in order for them to get the most from the Helpline, we do need clients making claims for benefits to ensure that they are ready to make their application.

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Assistance and safety when travelling

For people with narcolepsy, travelling on public transport may present particular difficulties: getting off at the right stop, making a connection, etc etc.

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The Narcolepsy Charter

Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.

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Catnap newsletter

Narcolepsy UK used to publish a newsletter, "Catnap". Back issues can be downloaded from this page.

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