benefits

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#NarcolepsyStories: Lee Martin

Blog post
6 October 2020
#NarcolepsyStories, diagnosis, delay, cataplexy, sex, school, university, employment, benefits

Sleep is as vital as drinking water and people who sleep well simply cannot grasp just how devastating a sleep disorder like narcolepsy can be.

I've had narcolepsy for as long as I can remember. But I went undiagnosed for almost two decades. Then, in my 20s, I had a cataplexy attack for the first time, my muscles suddenly giving way during sex. This was one of the most frightening experiences of my life because I remained conscious but had no idea what was going on and thought I must be dying.

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Template GP letter added to Resources

Blog post
17 May 2019
resources, GP, template, letter, benefits, diagnoses

Sometimes you may need a doctor's letter as evidence of your diagnosis of narcolepsy, for instance to support an application for benefits.

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New Helpline and Benefits Advisor

Blog post
17 November 2018
staff, benefits, advisor, linda

We are pleased to introduce to you Linda Reynolds who has joined us as Helpline and Benefits Advisor.

Linda is married with one adult daughter and with a close relative who has narcolepsy and cataplexy. She has a rather eclectic work history ranging from lecturing to making designer wear, managing manufacturing departments and shops and ending as a civil servant working on Tax Credits and latterly Universal Credit.

We look forward to working with Linda to offer support and in particular help with benefits to the UK narcolepsy community.

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Job opportunity - Benefits & Helpline Advisor

Blog post
26 March 2018
benefits, helpline, advisor, Job

Are you interested in working with Narcolepsy UK?

Benefits & Helpline Advisor required

Supplementing the work of Rebecca, who has recently reduced her hours following a change to her career path. We wish Rebecca well and are pleased she will still be working with us.

We seek a conscientious and dedicated person to work with our clients for 12 hours a week. Some day and some evening hours preferred, although we can be flexible with this we do need to have set hours when clients are able to contact you.

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Benefits helpline temporarily not available

Blog post
8 December 2017
helpline, benefits, advice

Our helpline service – the capacity of which is always stretched to the limit - has recently experienced an exceptional number of requests for assistance in relation to benefit claims. If you have already sent in a request for assistance we hope to be able to fulfill that request but are currently reviewing this and hope to be able to update you over the coming days.

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Benefit application checklist

Resource article
benefits

The following items can be useful to supply with any benefit applications relating to narcolepsy. It will be helpful to you if you can gather as many of them as possible to include with your application.

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