charter

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Narcolepsy Charter

Resource article

Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Narcolepsy Charter is a written statement of the rights of people with narcolepsy and their carers. It sets out the basic rights that people with narcolepsy and their carers deserve and should expect.

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Narcolepsy UK Charter adds our collective voice to enable new nationally recommended treatment for excessive daytime sleepiness in adults with narcolepsy with or without cataplexy in England and Wales.

Blog post
18 November 2021

Narcolepsy UK Charter adds our collective voice to enable new nationally recommended treatment for excessive daytime sleepiness in adults with narcolepsy with or without cataplexy in England and Wales.

National Institute for Health and Care Excellence (NICE) has recommended solriamfetol as an option for treating excessive daytime sleepiness in adults with narcolepsy if modafinil and either dexamfetamine or methylphenidate have not worked well enough or are not suitable.
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Infographics

Resource article

Narcolepsy UK have produced and/or distributed several helpful infographics in recent years. These can be used to share across social media, or other methods.

Here you can see small versions of each, with links to download the full size files at the bottom of the page.

You may also be interested in our Posters.

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#NarcolepsyStories

Resource article

In the run-up to World Narcolepsy Day 2020, Narcolepsy UK invited people with narcolepsy and their families to contribute their stories of what it's like to live with narcolepsy or with a person with narcolepsy.

Thank you to all those brave enough to share your experiences. Some of the stories make for hard reading and some are uplifting, but we hope that together they capture the spectrum nature of this disorder.

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Welcome to World Narcolepsy Day!

Blog post
22 September 2020

Today (September 22nd) is the second annual World Narcolepsy Day. This day is dedicated to raising awareness of narcolepsy on a global scale. Established by 24 patient advocacy organisations across 6 continents in 2019, World Narcolepsy Day unites the international narcolepsy community to inspire action, increase public knowledge, and elevate the voices of the 3 million people living with narcolepsy worldwide.

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#NarcolepsyStories: Liam Gordon

Blog post
11 September 2020

When walking home after a full day at university, I began to notice my knees buckle for a split second and there was nothing I could do. In that moment, it felt as if my whole body was about to give way; then the next thing I knew I was completely fine. I had just started my fourth year studying chemical and process engineering, the workload was high and beginning to get the better of me. At home, I might try to watch a film, but would be overwhelmed by a need to sleep and be unconscious within the first five minutes.

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World Sleep Day® and coronavirus

Blog post
13 March 2020

World Sleep Day® is Friday March 13, 2020 and will incorporate the slogan, 'Better Sleep, Better Life, Better Planet.'

Traditionally, Narcolepsy UK have marked mid-March as an important date in our calendar for raising awareness. Historically, this has broadly aligned with the Spring Equinox / European Narcolepsy Day & similar events run in the USA such as Sleep Awareness Week & Suddenly Sleepy Saturday.

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