Covid-19

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#NarcolepsyStories: Louie Gray

Blog post
29 September 2020

I am 31. It is now very obvious to me that I have had narcolepsy and cataplexy my whole life. I am still waiting for a formal diagnosis. It sickens me to think of the adults – the parents, the teachers, the doctors – who watched a child unable to wake up, who looked on at a child who’d collapsed and did nothing but scream at him.

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No 2020 Conference, but World Narcolepsy Day is still happening

Blog post
2 September 2020

We are very sorry to confirm that due to the ongoing pandemic situation and the need to protect the health and safety of the public, Narcolepsy UK are unable to host a conference this year. The annual conference has been a feature of Narcolepsy UK activity for decades and we did not take this decision lightly. We are aware that the annual conference is a great source of support to many people, and something that many look forward to. We hope to be able to welcome you all again next year.

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DVLA Covid Update

Blog post
2 August 2020

As a result of the impact of the COVID19 pandemic, Ministers at the Department for Transport have agreed to adopt a temporary measure to assist drivers in complying with the driving licence renewal requirements.

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Online Support Meetings

Blog post
25 March 2020

Hello everyone, here at Narcolepsy UK we think it is important to support each other in these very difficult times, so we are doing Online Support Meetings to help people with narcolepsy and their families/carers. If you want to chat to other people with narcolepsy or maybe you are feeling lonely, get in touch with me - Liam Sloan, Volunteer Coordinator at Narcolepsy UK and we will schedule you into one of the group chats, 4 per group. Alternatively you can also have a one on one with one of our staff/volunteers if needed.

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Narcolepsy does NOT mean higher risk of coronavirus

Blog post
19 March 2020

In the current climate, everyone is extremely concerned about the effects of Covid-19 on their own and their family’s health. A number of conditions are associated with elevated risk of significant complications of the infection, including individuals whose immune systems are suppressed through disease or medication. 

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World Sleep Day® and coronavirus

Blog post
13 March 2020

World Sleep Day® is Friday March 13, 2020 and will incorporate the slogan, 'Better Sleep, Better Life, Better Planet.'

Traditionally, Narcolepsy UK have marked mid-March as an important date in our calendar for raising awareness. Historically, this has broadly aligned with the Spring Equinox / European Narcolepsy Day & similar events run in the USA such as Sleep Awareness Week & Suddenly Sleepy Saturday.

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Update on meet ups

Blog post
10 March 2020

You may have noticed that the event postings for the meet ups in Bristol and Northampton that were scheduled for this coming weekend have been removed.

Due to the rapidly changing conditions and public health advice regarding the coronavirus Covid-19, we have taken the decision that it is not in the public interest for us to promote such get together events at this time.

Obviously we hope the situation improves rapidly, and we look forward to future events.

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