Neurological Alliance

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Call for national neurology plan following largest ever survey

Blog post
10 July 2019
Neurological Alliance, survey

People with neurological conditions are facing long waiting times, poor access to specialists and a lack of personalised care. That’s according to a new report published by The Neurological Alliance. The survey was the largest ever survey of people with neurological conditions in England with 10,339 responses. It also found failings in the social care and welfare system, as well as discrimination in the workplace for people with neurological conditions.

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Neurological Patient Experience survey (England)

Blog post
20 December 2018
NA, neurological, Neurological Alliance, survey, patient experience, England

In 2016 the Neurological Alliance ran a patient experience survey, gathering over 7000 responses, from patients with neurological conditions living in England (see previous blog post). The findings were used to campaign for better services and support for people with neurological conditions.

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Narcolepsy UK welcomes second neurological patient experience survey

Blog post
7 July 2016
NA, neurological, Neurological Alliance, survey, patient experience, England

The Neurological Alliance has launched its second neurological patient experience survey. The survey aims to collect vital information about the experiences of care received by people affected by neurological conditions and help us to understand how much progress has been made in improving neurological services.

The survey is open until 30 September 2016 and the Alliance welcomes responses from anyone with a neurological condition living in England.

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European Narcolepsy Day, Palma, Mallorca 2017 - Highlights

Blog post
Matt O'Neill
24 March 2017
European Narcolepsy Network, European Narcolepsy Day, Flamel, European Patient Advisory Group, Bioprojet, Wakix, Pitolisant, Neurological Alliance, Disability Rights UK, PIP, survey

Mid-March is always our busiest time of year, with more meet-ups arranged around the country each year and the gathering of the clans at the European Narcolepsy Network “European Narcolepsy Day” meeting held in a different host nation each year and now in it’s 8th year.

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Narcolepsy UK represented in the Neurological Alliance

Blog post
21 December 2016
Neurological Alliance

At our last annual conference in Manchester, we told you that the board of Narcolepsy UK had supported an application by our chair, Matt O’Neill, to join the board of the Neurological Alliance.

We are delighted to let you know that his application was successful and he was elected to the board of the Neurological Alliance at their recent AGM in November with the final formalities being completed today.

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