questionnaire

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Participate in a study - Situational Sleepiness Scale

Blog post
10 September 2020

We at Narcolepsy UK are excited to share with you new research that aims to improve how we help children with narcolepsy in the future and, more importantly, how you can get involved.

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Support a student with narcolepsy

Blog post
10 March 2020

Can you support a fellow person with narcolepsy in their studies?

We have been approached by a Year 12 student, with narcolepsy, who has decided to focus their Extended Project Qualification (EPQ) on evaluating the effectiveness of treatment for Type 1 narcolepsy (narcolepsy with cataplexy).

All results will be anonymous so please spare some time to answer this brief questionnaire and provide data for their very worthwhile project.

https://www.surveymonkey.co.uk/r/YN6HY9L

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Charter Questionnaire is now closed

Blog post
3 August 2018

All of us here at Narcolepsy UK would like to say thank you for the massive response you provided to our charter questionnaire. We are already busily reviewing the content to present to you at the annual conference in Manchester 8th-9th September. 

Looking forward to seeing as many of you there as possible.

Link to conference booking - https://www.narcolepsy.org.uk/civicrm/event/info?reset=1&id=89

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Narcolepsy Charter – Consultation goes live!

Blog post
28 June 2018

One of our most important projects for 2018 is the development of the Narcolepsy Charter.

Aimed at tackling the challenges and discrimination faced by the narcolepsy community across the UK, the Charter will be a written statement of the rights of people with narcolepsy and their carers. It will set out the basic rights that people with narcolepsy and their carers deserve and should expect.

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Narcolepsy Charter - survey being developed

Blog post
9 March 2018

This weekend, as part of the preparation work for the Narcolepsy Charter project introduced at the last Narcolepsy UK conference, we will be distributing a short-form pilot version of a survey at the arranged meet-ups to help us understand all the needs and factors affecting the lives of people with narcolepsy in the UK. Once we have processed the feedback we will then progress to an expanded online survey and hope to have as many people as possible engage with it.

Subscribe to questionnaire