Wakix

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NHS deny access to Wakix®

Blog post
14 September 2017

NHS Northern Treatment Advisory Group seeks to deny access to Wakix® in error filled evidence summary.

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Pitolisant / Wakix® Update

Blog post
9 September 2016

We have now received confirmation from the UK Supplier that the Department of Health have now priced Wakix® (Pitolisant) as follows:

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Is Wakix® the new Xyrem® ?

Blog post
25 June 2017

Is Wakix® the new Xyrem® ?

I do not ask this because of any similarities between what these two medications can do for people with narcolepsy but for other, far more frustrating reasons. Like Xyrem®, Wakix® has orphan drug status, its effects are not well understood, it is perceived as expensive and NHS adoption is slow because it is relatively new, despite the relevant NICE guidelines.

On May 23rd, 2016, I wrote the following paragraph:

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Pitolisant / Wakix® Update

Blog post
23 May 2016

I thought it would be useful to provide you all with an update on where progress with patient access has reached for the new, first-in- class, medicine known as Wakix® or Pitolisant. This oral medicine acts on histamine H3 receptors in the brain, leading to the release of increased histamine, thereby enhancing wakefulness and alertness.

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European Narcolepsy Day, Palma, Mallorca 2017 - Highlights

Blog post
24 March 2017

Mid-March is always our busiest time of year, with more meet-ups arranged around the country each year and the gathering of the clans at the European Narcolepsy Network “European Narcolepsy Day” meeting held in a different host nation each year and now in it’s 8th year.

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