We believe that people with narcolepsy and their families and friends have the same rights to a full and rounded life as any other person without having to make this happen.
The Charter is a written statement of these rights based on responses to an online survey of 302 people with narcolepsy and 149 supporters undertaken by Adelphi Research. The survey was made possible with support from Adelphi Research, Lincoln Medical Limited, The National Lottery Community Fund and UCB Pharma.
Narcolepsy UK presented the Charter at our conference in September 2019, as well as at smaller presentations and workshops at regional and local level. We continue to encourage as many organisations as possible to sign up to the Charter including professional bodies representing medical practitioners, schools, universities, employers and government service providers. We will support our members to convince individuals within schools, universities, workplaces, the NHS and their personal networks to sign up too.
By working together towards the charter’s vision in this way, we will achieve our goal of providing the respect, care and support that people with narcolepsy and their carers deserve and should expect.