A volunteer has kindly created these cards in order that a child can easily let a teacher know how they are feeling and allow the teacher to respond accordingly. If the child is feeling sleepy, then it is likely the child needs to have sleep therapy (a private nap in a safe place as already […]
Many young people with narcolepsy need to take doses of medication while at school. Particularly for younger children, who have not reached an age at which they are ready to take care of and be responsible for their own medication, it is vital that the school has an appropriate policy and adequate procedures in place […]
Navigating Medicine Shortages: How Narcolepsy UK is advocating for you We know that recent shortages of medications used to treat narcolepsy and ADHD due to ingredient shortages, manufacturing problems and a general surge in demand have created significant challenges for many of you. These shortages impact your ability to manage your condition effectively and live […]
Storing your medication safely and securely is critical. Like many drugs, narcolepsy medications may be very harmful if misused, and some are Controlled Drugs that are subject to legal storage requirements. For more information, download our simple guide to Storing Medication and take a look at the presentation on this subject given at our 2015 Annual Conference.
A scheme to assist air travellers with hidden disabilities is now operating at a number of UK airports. The scheme involves issuing the passenger with a distinctive lanyard, by which they are able to identify themselves discreetly to airport staff so that tailored help and support can be offered throughout their journey. The scheme has […]
Here are 50 simple ways to raise £50 for Narcolepsy UK. If you can think of any other please let us know!
In order for us to continue to organise conferences and events to benefit people with narcolepsy, it is vital that we are able to show to potential donors that our events are of value to our community. Therefore, if you organise an event for Narcolepsy UK, for instance a local meet-up or a fundraiser, please ask […]
The main way that we issue information to our community is through this website. However, for a number of years Narcolepsy UK also published a newsletter, “Catnap”. Whilst we no longer produce that hardcopy newsletter, back issues of it may nonetheless be of interest. They can be downloaded from this page. Click on a date […]
Everyone with narcolepsy knows that, as things stand, there is no cure for the condition. Instead, we rely on medication to control the symptoms, though for many people those drugs do not work well enough or have adverse side-effects. So what does the future hold? Will there be new and more effective treatments? What are […]
Flamel (Part of the Avadel Pharmaceuticals), are looking for subjects to participate in their clinical trial evaluating their once nightly sodium oxybate for the treatment of EDS and cataplexy in narcolepsy. FT218 is dosed once at bedtime unlike the currently marketed formulation of sodium oxybate (Xyrem®) which needs to be taken twice nightly, once at […]
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