European Patient Advisory Group

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Meeting of European Patient Advisory Group

Blog post
25 March 2018

A very good couple of days spent this weekend talking about how the European Patient Advisory Group can assist in raising awareness of clinical trials for the Rest-On trial.

https://www.narcolepsy.org.uk/resources/clinical-trial-single-dose-sodium-oxybate

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European Narcolepsy Day, Palma, Mallorca 2017 - Highlights

Blog post
24 March 2017

Mid-March is always our busiest time of year, with more meet-ups arranged around the country each year and the gathering of the clans at the European Narcolepsy Network “European Narcolepsy Day” meeting held in a different host nation each year and now in it’s 8th year.

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European Patient Advisory Group - new clinical trial

Blog post
17 March 2017

This year we have a great story to kick-off European Narcolepsy Day!

Narcolepsy UK have facilitated a meeting to initiate the creation of a European Patient Advisory Group to work closely with pharmaceutical companies on research and clinical trials of new medicines for Narcolepsy.

Even collectively, we would struggle to fund research but this way, we hope that we can provide our knowledge and assistance to make things happen faster.

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