European Patient Advisory Group
Mid-March is always our busiest time of year, with more meet-ups arranged around the country each year and the gathering of the clans at the European Narcolepsy Network “European Narcolepsy Day” meeting held in a different host nation each year and now in it’s 8th year.
This year we have a great story to kick-off European Narcolepsy Day!
Narcolepsy UK have facilitated a meeting to initiate the creation of a European Patient Advisory Group to work closely with pharmaceutical companies on research and clinical trials of new medicines for Narcolepsy.
Even collectively, we would struggle to fund research but this way, we hope that we can provide our knowledge and assistance to make things happen faster.