excessive daytime sleepiness

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#NarcolepsyStories: Nikita Tyler

Blog post

2 October 2020

#NarcolepsyStories, school, education, university, employment, hypnagogic hallucinations, excessive daytime sleepiness, cataplexy, diagnosis, GP

I had turned 13 and over the summer holidays, I began sleeping in until the afternoon and taking naps for the rest of the day. I put it down to feeling a bit depressed because my best friend at the time had moved away. My mum put it down to me being a lazy teenager. By the time I went back to school in September, the urge to sleep was becoming more frequent and more intense. I remember my eyes starting to sting in a religious studies lesson and I just wanted to shut them. At home, after school, I’d sit down and be asleep at exactly the same moment.

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#NarcolepsyStories: Heather Murphy

Blog post

9 October 2020

#NarcolepsyStories, diagnosis, GP, delay, school, education, university, cataplexy, excessive daytime sleepiness, quality of life

One day I was a child who could get up at 6am and stay awake until late in the evening. The next I just couldn’t stay awake. About a year on, I experienced cataplexy quite suddenly. It was not gradual like the tiredness. I would collapse whenever I laughed or even just with the joy of seeing friends.