Ongoing work to remove the barriers to access to sodium oxybate for management of narcolepsy and cataplexy.
Recent news on the UK Supreme Court ruling, European Commission views on the Pandemrix issue, and the ex gratia scheme for provision of Xyrem to Pandemrix personal injury claimants.
NHS England’s Specialised Services announce they will routinely commission Sodium oxybate for symptom control for narcolepsy with cataplexy (children).
Narcolepsy UK exists for the benefit, relief and aid of persons suffering from narcolepsy.
Find out more about the history, management and financials of the charity here.
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